Family Members' Views: What is Quality in Assisted Living Facilities Providing Care to People with Dementia?. 3. STUDY RESULTS


This section of the report describes the results of our analysis of the focus group discussion. It does not report all of the comments nor raise all of the issues discussed by family members. For example, much discussion was devoted to the characteristics, personality, and current physical and cognitive status of the loved one who was in an assisted living facility, as well, more generally, as to the consequences and trajectory of Alzheimer's disease. To the degree that the illuminated the specific topics under discussion, some have been included. However, our focus in the summaries is to identify and analyze those comments that specifically addressed our primary analytic concerns. These were to identify how families defined quality and to learn more about what they felt were successful techniques for shopping for a facility. Thus, in this section, we report on the characteristics of the focus group participants, what families said about quality and how they judged it, and which elements they identified as the most important aspects of quality. Finally, we present family members comments on some "miscellaneous" topics that arose, such as what they perceived as barriers to receiving appropriate care, the difficulty of identifying a good facility, including knowing what was meant by "assisted living," suggestions for how to shop for a facility, and family needs for support.

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