Data on Health and Well-being of American Indians, Alaska Natives, and Other Native Americans. Catalog Organization

12/01/2006

The data catalog is organized into six sections beyond this introduction. Each of these sections is described in the bullets below:

  • Section 3 provides a listing of the data sources included in the catalog sorted by key policy areas. The data sources listed in each section are particularly appropriate for answering questions in the topical area but may also contain data in other areas; therefore, data sources may be listed under more than one policy area.

    Under each policy topic, data source name and corresponding page number are presented. The page number can be used to find the detailed information on the data source in Section 5.

  • Section 4 provides a listing of data sources included in the catalog sorted by subpopulations identified and analyzable (e.g., all AI/AN/NA, American Indians and Alaska Natives, Pacific Islanders, Native Hawaiians, named tribes or communities). Page number is also included.
  • Section 5, which is the largest section of this report, provides in depth profiles of all data sources presented alphabetically. A more detailed description of topics covered in these detailed profiles is presented below.
  • Section 6 includes a list of data sources identified but not reviewed for the catalog. This list is also alphabetical and is briefly annotated with reasons the data sources were not included in the review and selected information collected about the data set prior to its exclusion.
  • Section 7 includes reference information on a set of reports identified during this review that ASPE and the project team believe might be of particular interest to catalog users. These reports are generally of three types: reports concerning data that are not directly available to potential users but on which there are published detailed analytical reports, reports that are data compilations covering important issues using multiple data sources, and selected reports concerning the profiled data sources identified for review. This list of reports is not meant to be exhaustive but represents potentially useful information obtained in the course of assembling this catalog.
  • Appendices to this catalog include a glossary of terms, a brief discussion of issues related to data aggregation, and the review protocol used to screen and profile the data sources.

As noted above, Section 5 provides detailed profiles of each data source. Included in the detailed profiles are 25 possible elements. If they are not relevant to the data source, elements are not included in the profile; for example, if no information on AI/AN/NA subgroups is available, this field is not shown in the profile. The 25 possible elements for a data source profile include:

  1. Name of Data Source
  2. Sponsor  documents the agency or funding source for the data collection.
  3. Description  provides a summary description of the purpose of the data collection and the general content of the data set.
  4. Data Type(s)  indicates whether the data source is a survey, registry, or program reporting database.
  5. Relevant Policy Issues  draws from the list of policy issues described above.
  6. Unit of Analysis  describes the level(s) at which the data were collected (e.g., individuals, families, households, farms). This information can help users determine the type of analysis that can be conducted and the research questions that can be asked.
  7. Identification of AI/AN/NA  provides detailed information on how data about race and ethnicity were collected for this data source. Where possible, question or form field text is included.
  8. AI/AN/NA Population in Data Set  provides the unweighted count of American Indian, Alaska Native, or other Native American persons or families included in the data source. This information is provided in as much detail as is available (e.g., for American Indians only).
  9. AI/AN/NA subpopulations  provides information on subpopulations for which analysis is possible (e.g., American Indian alone, tribal affiliation).
  10. Geographic Scope  indicates the level of geographic analysis possible (e.g., national only, state, region).
  11. Date or Frequency  provides information on the date of data collection and how frequently, if relevant, the data collections are repeated.
  12. Aggregation  this section is included only where it is necessary or particularly relevant to consider combining data collections across years. For example, when the AI/AN/NA sample size is extremely small in one year, it may be necessary to combine multiple years of data to obtain a sample size appropriate for statistical analysis. Or, when the data are collected in segments across several years, it may be desirable to aggregate across the years to provide full population coverage.
  13. Data Collection Methodology  provides some detail on how the data are collected (e.g., telephone, paper questionnaire.)
  14. Participation  documents whether participation in the data collection effort was mandatory or optional, and may provide information on the use of incentives.
  15. Response Rate  documents the response rate or coverage of the data collection. Unweighted response rates are provided where possible as these are the most directly interpretable. Where only weighted response rates are available, they are reported and, in most cases, briefly explained.
  16. Sampling Methodology  provides detail on how individuals, household, or other foci were selected to participate in the data collection. This is usually only appropriate for surveys and, rarely, program reporting databases.
  17. Oversample of AI/AN/NA Population  addresses the degree to which AI/AN/NA persons were purposely selected in excess of what would occur randomly.
  18. Analysis  includes information important to conducting statistical analyses of the data; for example, information on the standard errors of any estimates, the effective sample size, design effects, and description of the power available to detect differences in the data.
  19. Authorization  describes the authorizing legislation for the data collection, where appropriate.
  20. Strengths  summarizes the key strengths of the data source for AI/AN/NA research, as identified by the reviewers.
  21. Limitations  summarizes the key limitations of the data source identified by the reviewers.
  22. Other  contains other important information identified by the reviewer.
  23. Access Requirements and Use Restrictions  describes the steps and cost involved in accessing, if possible, the data set.
  24. Contact Information  typically provides a name, telephone number, address, and email for the office responsible for the data collection. However, in some cases only a name is provided, and in other cases, only an email or Internet link is provided.
  25. Reports of Interest  provides a non-exhaustive list of key reports related to the data source identified in the course of the project.

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