As described above, this catalog is meant to provide overview information on a wide variety of data sources that can address health and well-being issues for AI/AN/NA populations. It is not meant to be an exhaustive listing of all data available on AI/AN/NA populations concerning health and well-being. Time and resource limitations prevented coverage of the entire universe of data sources that might be used to address these topics. To ensure that the catalog would provide broad coverage of the major topics of health and well-being, as a first step, the project staff, in consultation with ASPE, representatives of the DHHS Data Council's Racial and Ethnic Data Working Group (a workgroup for this project), and a small AI/AN/NA workgroup developed a detailed list of policy issues within the categories of health and well-being that should be covered in the catalog. The purpose of this policy list was to guide decision making about the content of the data sources that should be included. The project staff attempted to maximize coverage of the policy issues and avoid redundancy in the data sources being reviewed. This list of policy issues is presented in Figure 1.
DEMOGRAPHIC AND ECONOMIC INDICATORS (e.g., age distribution, marital status, household composition)
HEALTH POLICY ISSUES
Education Levels and Opportunities
Transportation Quality and Availability Issues
Justice System Issues
Military Service/Veterans' Issues
Beyond policy parameters, the project team, in consultation with ASPE, members of the DHHS workgroup, and the AI/AN/NA workgroup, also established the following technical parameters for the data catalog:
- Data should be from a survey, program reporting system, or registry;
- Data should be quantitative in nature;
- Data source must allow user to identify people who are AI/AN/NA or focus on a specific geographic region with a large AI/AN/NA population;
- Data source must be available to researchers (as data or as requested analyses) or have extensive published tables and reports available;
- Contact and location information regarding the data source must be available;
- Documentation of data collection methods should be available;
- Data should not have been collected primarily to fill advocacy needs, lobbying purposes, or to support corporate interests;
- Total unweighted AI/AN/NA population in data source should be available, and the sample size must be adequate for analyses;
- Coverage of data source must be either national or focus on a specific AI/AN/NA subpopulation only (e.g., single tribe, Pacific Islanders), or consist of a smaller geographic area of clear relevance to the AI/AN/NA population; and
- Timeframe of the data source should be mid-1990s or later (unless a strong argument can be made to include older data).
The review of data sources conducted based on these parameters did not include an assessment of the quality of the data source. A careful examination of the actual data to make such an assessment was beyond the scope of this effort. Instead, reviewers sought to provide sufficient information about the data source to allow users to make an initial assessment of the potential usefulness of the data source for their purposes. We strongly recommend that potential users thoroughly examine the documentation and data from these sources to make their own assessments of the quality of the data.
"report.pdf" (pdf, 1.56Mb)
"apa.pdf" (pdf, 107.76Kb)
"apb.pdf" (pdf, 88.97Kb)
"apc.pdf" (pdf, 233.07Kb)