Case Studies of Six State Personal Assistance Service Programs Funded by the Medicaid Personal Care Option. Interviewees


At each site, the research team interviewed 25-50 individuals, each of whom was involved in some fashion with the Personal Care program in that state. Attempts were made to talk with one or more representatives of each of the following groups:

  1. Program advisors - advisory boards (both agency and interagency), and individuals responsible for the development of specific program policy were contacted in each state.

  2. Program administrators - individuals who oversee the delivery of program services to consumers at both the state and local/county level were interviewed at each site. This included state administrators, local/county administrators, supervisors, and case managers. Administrators in other state departments were sometimes contacted if they were involved in related service provision (e.g. Vocational Rehabilitation, Aging Services).

  3. Program advocates - attempts were made to contact representatives of each of the following groups: (a) Consumer advocacy groups (e.g. ILCs, ARCs, UCP, Grey Panthers, other senior advocacy groups); (b) Associations/unions representing attendants (both agency and independent providers); (c) Homecare agency associations.

  4. Consumers - ILCs and/or other advocacy groups convened one or more small focus groups of service recipients.

  5. Providers - provider agency administrators, nurse supervisors and attendants were interviewed whenever possible.

To identify the above individuals, the research team relied primarily on the recommendations of the state program administrators, as well as WID's existing connections with independent living centers, ARC, UCP and other groups. Many states did not have organized advocacy groups involved in PAS policy, so contacting representatives of key populations (i.e. elderly people, people with head injuries, people with mental illness) was difficult or impossible. Access to consumers was often limited because of logistical difficulty in organizing and transporting people who use PAS to a single site for group interviews. In some states it was impossible to contact attendants, because of logistical constraints, notably lack of reimbursement mechanisms.

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