Beyond the Water's Edge: Charting the Course of Managed Care for People with Disabilities - Conference Resource Book. Reactor Biographies

11/01/1996

Gerbon DeJong, Ph.D.
Gerben DeJong is the Director of the National Rehabilitation Hospital Research Center (NRH-RC) and the Director of the Research and Training Center in Medical Rehabilitation and Health Policy (RTC-MR&HP) in Washington, DC. He also serves as a Professor in the Department of Family Medicine at Georgetown University's School of Medicine. Prior to coming to NRH in 1985, Dr. DeJong was a Senior Research Associate and Associate Professor in the Department of Rehabilitation Medicine at Tufts University School of Medicine in Boston, MA. Dr. DeJong's academic training is in economics and public policy studies. His main research interests are in disability and health outcomes, health care utilization, disability policy, long-term care policy, national health care policy, and biomedical ethics. He is the author or co-author of more than 140 papers on health, income maintenance, and disability issues. He is perhaps best known for his seminal work on disability and health policy and the independent living movement. His works have appeared in a variety of health, science, business, and public policy journals. His works have appeared in more than seven different languages. In 1985, he received the Licht Award for Excellence in Scientific Writing from the American Congress of Rehabilitation Medicine. He is a frequently invited speaker both in the United States and abroad. In 1984, he was a Fulbright Scholar in the Netherlands serving with the research staff of the Social Security Council.

Dr. DeJong is an ardent student of health care reform and the managed care revolution. He is especially interested in managed care's probable impact on medical rehabilitation, on people with disabilities, and on other vulnerable populations. During the Clinton transition, Dr. DeJong served on the Transition Team's working group on long-term care policy. During the health care reform debate in the 103rd Congress, he spoke throughout the country on health care reform. He continues to testify before Congress on health care and disability income issues. In 1993, Dr. DeJong presented the honorary Coulter Lecture to the American Congress of Rehabilitation Medicine on the topic of "Health Care Reform and Disability." In 1994, he gave the keynote address to the National Brain Injury Association's annual meetings on the future of health care reform and brain injury. In 1995, Dr. DeJong presented the honorary John W. Goldschmidt Lecture at NRH on "Empowering the Consumer and Enabling the Provider in an Era of Managed Care."

Tony Dreyfus
Tony Dreyfus joined the Medicaid Working Group in 1993 to work on rate setting, casemix adjustment and Medicare waiver issues. The Group was organized with funds from Pew and Robert Wood Johnson to assist in the creation of managed care programs for Medicaid recipients with significant disability or chronic illness in Wisconsin, Ohio, Missouri and New York.

Mr. Dreyfus has been working in the past year with Richard Kronick, also of the Medicaid Working Group, on the development of a diagnosis-based risk adjustment system for people with disabilities. Mr. Dreyfus works part-time with the Community Medical Alliance, a managed care program for Medicaid recipients with late-stage AIDS or severe physical disability.

Co-authored articles include "Making Risk Adjustment Work for Everyone" (Inquiry), "The Community Medical Alliance: an Integrated System of Care in Greater Boston for People with Severe Disability or AIDS" (Managed Care Quarterly), and "Diagnostic Risk Adjustment for Medicaid: the Disability Payment System" (Health Care Financing Review).

Mr. Dreyfus earned his master's degree in planning at MIT and has worked in economic analysis, teacher training and curriculum development, elder homecare, and in a group home for men with mental retardation.

Lex Frieden
Lex Frieden is Senior Vice President at The Institute for Rehabilitation and Research (TIRR) in Houston, TX. TIRR is a comprehensive medical rehabilitation center which provides clinical, educational, and research programs pertaining to spinal cord and brain injuries and other disabling conditions. He is also Professor of Physical Medicine and Rehabilitation at Baylor College of Medicine.

From 1984-1988, Mr. Frieden served as Executive Director of the National Council on the Handicapped (now the National Council on Disability), an independent Federal agency located in Washington, DC. In this capacity, he was instrumental in conceiving and drafting the recently enacted Americans with Disabilities Act (ADA).

A graduate of Tulsa University, Mr. Frieden has been honored as a Distinguished Alumnus. He also holds a master's degree in social psychology from the University of Houston. He has done additional graduate work in rehabilitation psychology at the University of Houston with support from an SRS doctoral fellowship, and he has been awarded a World Rehabilitation Fund Fellowship to study programs for disabled people in Europe. Currently, he is Deputy Vice President for North America of Rehabilitation International.

Mr. Frieden, a quadriplegic due to a spinal cord injury, has been involved in the organization of several groups of disabled individuals including the American Coalition of Citizens with Disabilities, the Coalition of Texans with Disabilities, and the Houston Coalition for Barrier Free Living.

Working in the independent living movement by severely disabled people since the early 1970s, Mr. Frieden has published several books and papers on independent living. He served as a consultant panel member for the United States House of Representatives' Committee on Science and Technology from 1976-1978, and he prepared the background paper on "Community and Residential Based Housing" for the White House Conference on Handicapped Individuals in 1977. From 1989-1990, he represented the United States on a disability and employment panel at the Organization for Economic Cooperation and Development in Paris, France.

He has received two Presidential Citations for his work in the field of disability, and he was honored by the U.S. Jaycees in 1983 as one of America's Ten Outstanding Young Men.

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