Assessing the Need for a National Disability Survey: Final Report. Notes


  1. Due to resource constraints, a small number of surveys that met these general requirements were not reviewed. In the discussion of the surveys presented in Chapter II, we note instances of surveys that meet the above criteria and/or were identified as being used by federal staff but were not included in our review.

  2. These excluded surveys include the Consumer Assessment of Healthcare Providers and Systems; Healthcare Cost and Utilization Project; Integrated Postsecondary Education Data System; National Home and Hospice Care Survey; National Hospital Discharge Survey; National Postsecondary Student Aid Study; National Survey of America’s Families; National Survey on Family Growth; Postsecondary Education Quick Information System; Special Education Elementary Longitudinal Study; Surveillance, Epidemiology and End Results Program; Survey of Veteran Enrollees’ Health and Reliance upon VA; and the Youth Risk Behavior Surveillance System.

  3. Many of the questions shown in Table II.4 differ somewhat from the actual questions provided by federal and state agency staff; they represent condensed questions, elaborated questions given the context of the respondent’s feedback, and combinations of related questions from different agencies.

  4. According to staff of the Aging and Chronic Disease Statistics Branch of NCHS, a 15-minute supplement to the NHIS would cost approximately $10 million to administer to the entire NHIS sample, and a 20-minute supplement would cost about $20 million. These estimates do not include development and testing costs. A supplement focused only on those identified as having a disability based on questions contained in other parts of the survey would include a substantially smaller sample, and presumably, could be administered for less than the cost of administering to the full sample. NCHS staff indicated that their survey costs have been increasing over time and that currently, the lead time for a supplement to be administered with the NHIS is three or four years.

  5. Using the Census as a sampling base is not currently a possibility in the United States due to the removal of disability-related questions in the 2010 Census.

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