Assessing the Need for a National Disability Survey: Final Report. Appendix B. Tabular Summary of Surveys

09/29/2011

Note to Readers about Appendix B

The summary tables provided in this appendix are not intended to present a detailed level of information about each of the 40 national surveys reviewed for this project. Rather, they are intended to portray the large and multidimensional variation across the 40 surveys in terms of their frequency of administration, nature of their samples, topic areas, and how health and disability concepts are measured. For more information about each survey, the reader is referred to the detailed survey summaries that are provided in the companion report (Livermore et al. 2011b).

TABLE B.1. Ongoing National Surveys
  Survey Features     ACS     AHS     ATUS     BRFSS  
Population
Household Population X X X X
Noninstitutional Group Quarters Population 2006 and later X X1  
Institutional Population 2006 and later X    
Special Population Subgroup        
Age Groups
Children (under 18) X X Age 15 and older  
Working-Age Adults (18-64) X X X X
Seniors (65+) X X X X
Geographic Level of Estimates
National X X X X
Regional X X2   X
State X     X
Timing
Latest Year Available 2010 2009 2009 2010
Time-Series 2006-20103 1973-2009 2003-present 1984-present
Longitudinal   1985-2009    
Health/Disability Indicators
General Health Status     2006-2008 X
Body Mass (weight, height, obesity)     2006-2008 X
Sensory/Communication Limitations X 1978; 1995; 2009   X
Physical Limitations/Functional Limitations X 1978; 1995; 2009   X
ADL Limitations   1978; 1995; 2009    
IADL Limitations   1978; 1995; 2009    
Limitations in Work/Usual Activities X 1978; 1995; 2009 X4 X
Learning Disability   1978; 20095    
Mental/Emotional Disorders or Symptoms X6 1978; 20095   X
Cognitive Impairment or Developmental Disorders X6 1978; 20095   X
Social Participation/Interpersonal Interactions X      
Substance Use/Abuse/Dependence        
Specific Chronic Conditions/Medical Conditions   1978   X
Use of/Need for Assistive Equipment   1978; 1995   X
Use of or Need for Personal Assistance   1978; 1995; 2009    
Bed Days/Lost Productivity Days       X
Disability Benefit Receipt/Program Participation X X    
Self/Others Identify as Disabled   1978 X4  
Topic Domains
Education X X X X
Employment X X X X
Health X   2006-2008 X
Health/Disability-Related Service Use        
Health Insurance X     X
Household Expenditures X X    
Housing X X    
Income/Economic Well-Being X X X7 X
Public Program Participation X X 2006-2008  
Transportation X X    

TABLE B.1. (continued)
  Survey Features     Census     CE     CPS     MEPS  
Population
Household Population X X X X
Noninstitutional Group Quarters Population X X8 X X
Institutional Population X     1996 only
Special Population Subgroup        
Age Groups
Children (under 18) X Age 16 and older Age 15 and older X
Working-Age Adults (18-64) X X X X
Seniors (65+) X X X X
Geographic Level of Estimates
National X X X X
Regional X X X9 X10
State X   X11 X12
Timing
Latest Year Available 2010 2010 2011 2008
Time-Series 1790-2010 1980-present 1940-present 1996-present
Longitudinal       X
Health/Disability Indicators
General Health Status       X
Body Mass (weight, height, obesity)       2002-present
Sensory/Communication Limitations     2008-present X
Physical Limitations/Functional Limitations     2008-present X
ADL Limitations     2008-present X
IADL Limitations     2008-present X
Limitations in Work/Usual Activities   X4 X X
Learning Disability        
Mental/Emotional Disorders or Symptoms     2008-present X
Cognitive Impairment or Developmental Disorders     2008-present X
Social Participation/Interpersonal Interactions        
Substance Use/Abuse/Dependence   X13    
Specific Chronic Conditions/Medical Conditions       X
Use of/Need for Assistive Equipment   X13   X
Use of or Need for Personal Assistance   X13   X
Bed Days/Lost Productivity Days       X
Disability Benefit Receipt/Program Participation   X14   X
Self/Others Identify as Disabled        
Topic Domains
Education   X X X
Employment   X X X
Health   X   X
Health/Disability-Related Service Use   X13   X
Health Insurance   X13 X15  
Household Expenditures   X    
Housing   X    
Income/Economic Well-Being   X X15 X
Public Program Participation   X13    
Transportation   X16    

TABLE B.1. (continued)
  Survey Features     NCVS     NHANES     NHES     NHIS  
Population
Household Population X X X X
Noninstitutional Group Quarters Population X8 X   X
Institutional Population        
Special Population Subgroup   X17    
Age Groups
Children (under 18) Age 12 and older X X X
Working-Age Adults (18-64) X X X X
Seniors (65+) X X X X
Geographic Level of Estimates
National X X X X
Regional 1979-200418   X X
State       X
Timing
Latest Year Available 2008 2009-2010 2007 2010
Time-Series 1972-2008 1999-present 1991-200719 1997-present
Longitudinal   X20    
Health/Disability Indicators
General Health Status   X   X
Body Mass (weight, height, obesity)   X X X
Sensory/Communication Limitations X21 X X X
Physical Limitations/Functional Limitations X21 X22 X X
ADL Limitations X21 X23   X
IADL Limitations X21 X   X
Limitations in Work/Usual Activities X4 X   X
Learning Disability     X X
Mental/Emotional Disorders or Symptoms   X X X
Cognitive Impairment or Developmental Disorders X21 X X X
Social Participation/Interpersonal Interactions   X    
Substance Use/Abuse/Dependence   X    
Specific Chronic Conditions/Medical Conditions X21 X   X
Use of/Need for Assistive Equipment   X   X
Use of or Need for Personal Assistance   X   X
Bed Days/Lost Productivity Days   X   X
Disability Benefit Receipt/Program Participation   X X X
Self/Others Identify as Disabled X21 X X  
Topic Domains
Education X X X X
Employment X X X X
Health   X X X
Health/Disability-Related Service Use   X X X
Health Insurance X21 X X X
Household Expenditures   X    
Housing X X    
Income/Economic Well-Being X X X X
Public Program Participation X   X X
Transportation X21 X    

TABLE B.1. (continued)
  Survey Features     NSDUH     NSFH     PSID     SCF     SIPP  
Population
Household Population X X X X X
Noninstitutional Group Quarters Population X X24 X1   X
Institutional Population     X1    
Special Population Subgroup     X25    
Age Groups
Children (under 18) Age 12 and older X X   X
Working-Age Adults (18-64) X X X X X
Seniors (65+) X X X X X
Geographic Level of Estimates
National X X X X X
Regional X        
State X       2004 and later
Timing
Latest Year Available 2009 2001-2003 2009 2007 2008 panel
Time-Series 1972-present 1987-1988, 1992-1994, 2001-2003   1983-present 1984-present
Longitudinal   X X 1983-1989 X
Health/Disability Indicators
General Health Status   X X X X
Body Mass (weight, height, obesity) X   X    
Sensory/Communication Limitations         X
Physical Limitations/Functional Limitations   X X   X
ADL Limitations   X X   X
IADL Limitations   X X   X
Limitations in Work/Usual Activities X X X X X
Learning Disability     X    
Mental/Emotional Disorders or Symptoms X X X   X
Cognitive Impairment or Developmental Disorders   X X   X
Social Participation/Interpersonal Interactions X        
Substance Use/Abuse/Dependence X X X    
Specific Chronic Conditions/Medical Conditions X X X   X
Use of/Need for Assistive Equipment     X   X
Use of or Need for Personal Assistance   X X   X
Bed Days/Lost Productivity Days X   X    
Disability Benefit Receipt/Program Participation X X X X X
Self/Others Identify as Disabled          
Topic Domains
Education X X X X x
Employment X   X X X
Health X X X   x
Health/Disability-Related Service Use X X X   X
Health Insurance X X X X X
Household Expenditures     X X X
Housing   X x X x
Income/Economic Well-Being X X X X X
Public Program Participation X X X X X
Transportation     X    

TABLE B.2. Surveys on Health, Disability, Aging, and Long-Term Care
  Survey Features     HOS     HRS     LSOA     MCBS  
Population
Household Population   X X X
Noninstitutional Group Quarters Population   X1   X
Institutional Population   X1   X
Special Population Subgroup X     X
Age Groups
Children (under 18)       X
Working-Age Adults (18-64)   X   X
Seniors (65+)   X X X
Geographic Level of Estimates
National X X X X
Regional   X    
State X X    
Timing
Latest Year Available 2009 2010 2000 2005; 200426
Time-Series 1998-present 1992-present   1991-present
Longitudinal X 1992-present 1984-1990; 1994-2000  
Health/Disability Indicators
General Health Status X X X27 X
Body Mass (weight, height, obesity) X X X28 X
Sensory/Communication Limitations X X X X
Physical Limitations/Functional Limitations X X X X
ADL Limitations X X X X
IADL Limitations   X X X
Limitations in Work/Usual Activities X X    
Learning Disability        
Mental/Emotional Disorders or Symptoms X X   X
Cognitive Impairment or Developmental Disorders   X X29 X
Social Participation/Interpersonal Interactions X X X X
Substance Use/Abuse/Dependence   X    
Specific Chronic Conditions/Medical Conditions X X X X
Use of/Need for Assistive Equipment   X X30 X
Use of or Need for Personal Assistance   X X X
Bed Days/Lost Productivity Days   X    
Disability Benefit Receipt/Program Participation   X X  
Self/Others Identify as Disabled        
Topic Domains
Education X X   X
Employment   X X X
Health X X X X
Health/Disability-Related Service Use        
Health Insurance   X X X
Household Expenditures     X31  
Housing X X X X
Income/Economic Well-Being X X X X
Public Program Participation   X   X
Transportation   X X X32

TABLE B.2. (continued)
  Survey Features     NBS     NCS     NHIS-D     NLTCS  
Population
Household Population X X X X
Noninstitutional Group Quarters Population X X33 X X
Institutional Population X     X
Special Population Subgroup X     65 and older
Age Groups
Children (under 18)   X34 X  
Working-Age Adults (18-64) X X X  
Seniors (65+)   X X X
Geographic Level of Estimates
National X X X  
Regional     X  
State     X  
Timing
Latest Year Available 2010 2002 1994-1995 2004
Time-Series 2004-2006, 2010     1982-2004
Longitudinal X35     1982-2004
Health/Disability Indicators
General Health Status X X X36 X
Body Mass (weight, height, obesity) X X37 X26 X
Sensory/Communication Limitations X X38 X X
Physical Limitations/Functional Limitations X X38 X X
ADL Limitations X X X X
IADL Limitations X X X X
Limitations in Work/Usual Activities X X X X
Learning Disability   X38 X39  
Mental/Emotional Disorders or Symptoms X X X X
Cognitive Impairment or Developmental Disorders X X38 X X
Social Participation/Interpersonal Interactions X X X X
Substance Use/Abuse/Dependence X X X  
Specific Chronic Conditions/Medical Conditions X X X X
Use of/Need for Assistive Equipment X X37 X X
Use of or Need for Personal Assistance X X37 X X
Bed Days/Lost Productivity Days     X  
Disability Benefit Receipt/Program Participation X X38 X X
Self/Others Identify as Disabled   X4 X40  
Topic Domains
Education X X X X
Employment X X X41 X
Health X X X X
Health/Disability-Related Service Use X   X X
Health Insurance X X X41 X
Household Expenditures     X  
Housing     X41 X
Income/Economic Well-Being X X X X
Public Program Participation X X X X
Transportation     X41 X

TABLE B.2. (continued)
  Survey Features     NNHS     NSCF     NS-CSHCN  
Population
Household Population   X X
Noninstitutional Group Quarters Population   ?42  
Institutional Population X    
Special Population Subgroup X    
Age Groups
Children (under 18) X X X
Working-Age Adults (18-64) X X  
Seniors (65+) X X  
Geographic Level of Estimates
National X X X
Regional X    
State   2004 and later X
Timing
Latest Year Available 2004 2008 panel 2006
Time-Series 1973-2004 1984-present  
Longitudinal   X  
Health/Disability Indicators
General Health Status   X X
Body Mass (weight, height, obesity)      
Sensory/Communication Limitations   X X
Physical Limitations/Functional Limitations X X X
ADL Limitations X X X
IADL Limitations   X X
Limitations in Work/Usual Activities   X X
Learning Disability     X
Mental/Emotional Disorders or Symptoms X X X
Cognitive Impairment or Developmental Disorders X X X
Social Participation/Interpersonal Interactions     X
Substance Use/Abuse/Dependence     X
Specific Chronic Conditions/Medical Conditions X X X
Use of/Need for Assistive Equipment   X X
Use of or Need for Personal Assistance   X X
Bed Days/Lost Productivity Days     X
Disability Benefit Receipt/Program Participation   X X
Self/Others Identify as Disabled      
Topic Domains
Education   X X
Employment   X X
Health X X X
Health/Disability-Related Service Use   X X
Health Insurance X X X
Household Expenditures   X  
Housing X X X
Income/Economic Well-Being   X X
Public Program Participation   X  
Transportation      

TABLE B.3. Surveys on Youth and Education
  Survey Features     Add Health     B&B     BPS     ECLS  
Population
Household Population X     X
Noninstitutional Group Quarters Population X     X
Institutional Population       X
Special Population Subgroup X43 X44 X45  
Age Groups
Children (under 18) X   X X
Working-Age Adults (18-64) X X X  
Seniors (65+)        
Geographic Level of Estimates
National X X X X
Regional X      
State        
Timing
Latest Year Available 2008 2008-2009 2009 2007
Time-Series   1993-present 1990-2009  
Longitudinal X 1993-2003; 2000-2001; 2008-present 1990-1994; 1996-2001; 2004-2009 X
Health/Disability Indicators
General Health Status X     X
Body Mass (weight, height, obesity) X      
Sensory/Communication Limitations X X X X
Physical Limitations/Functional Limitations X X X X
ADL Limitations X      
IADL Limitations X      
Limitations in Work/Usual Activities X X46   X
Learning Disability   X X X
Mental/Emotional Disorders or Symptoms X X X X
Cognitive Impairment or Developmental Disorders X   X X
Social Participation/Interpersonal Interactions X      
Substance Use/Abuse/Dependence X      
Specific Chronic Conditions/Medical Conditions X     X
Use of/Need for Assistive Equipment X   X X
Use of or Need for Personal Assistance     X  
Bed Days/Lost Productivity Days X      
Disability Benefit Receipt/Program Participation   X X X
Self/Others Identify as Disabled   X X  
Topic Domains
Education X X X X
Employment X X X X47
Health X     X
Health/Disability-Related Service Use     X48 X
Health Insurance X     X
Household Expenditures        
Housing X   X  
Income/Economic Well-Being X X X X
Public Program Participation X X X X
Transportation     X49  

TABLE B.3. (continued)
  Survey Features     HSLS     NELS     NLSY97     NLTS2     NSCH  
Population
Household Population X X X X X
Noninstitutional Group Quarters Population X X X50 X  
Institutional Population     X50    
Special Population Subgroup X51 X   X  
Age Groups
Children (under 18) X Age 14-26 X X X
Working-Age Adults (18-64)   Age 14-26 X1 X1  
Seniors (65+)          
Geographic Level of Estimates
National X X X X X
Regional          
State X       X
Timing
Latest Year Available 2009 2000 2008 2008-09 2008
Time-Series         2003-present
Longitudinal X 1988-2000 1997-present 2000-01- 2008-09  
Health/Disability Indicators
General Health Status     X X X
Body Mass (weight, height, obesity)     X   X
Sensory/Communication Limitations X X X X X
Physical Limitations/Functional Limitations X X X X X
ADL Limitations          
IADL Limitations       X  
Limitations in Work/Usual Activities     X X X
Learning Disability X X   X X
Mental/Emotional Disorders or Symptoms X X X X X
Cognitive Impairment or Developmental Disorders X X X X X
Social Participation/Interpersonal Interactions       X X
Substance Use/Abuse/Dependence     X    
Specific Chronic Conditions/Medical Conditions       X X
Use of/Need for Assistive Equipment       X  
Use of or Need for Personal Assistance       X  
Bed Days/Lost Productivity Days       X  
Disability Benefit Receipt/Program Participation X   X X X
Self/Others Identify as Disabled   X   X  
Topic Domains
Education X X X X  
Employment X X X X X
Health     X X X
Health/Disability-Related Service Use       X X
Health Insurance   X X X X
Household Expenditures          
Housing   X X   X
Income/Economic Well-Being X X X X X
Public Program Participation   X X X  
Transportation       X  

TABLE B.4. Surveys of Other Subpopulations
  Survey Features     NSV     SILJ     SISCF/SIFCF  
Population
Household Population      
Noninstitutional Group Quarters Population      
Institutional Population X X X
Special Population Subgroup X X X
Age Groups
Children (under 18)   Age 12 and older Age 12 and older
Working-Age Adults (18-64)   X X
Seniors (65+)   X X
Geographic Level of Estimates
National X X X
Regional      
State      
Timing
Latest Year Available 2001 2002 2004
Time-Series 1978-2009   X52
Longitudinal      
Health/Disability Indicators
General Health Status X    
Body Mass (weight, height, obesity)   X X
Sensory/Communication Limitations X X X
Physical Limitations/Functional Limitations X X X
ADL Limitations X    
IADL Limitations X    
Limitations in Work/Usual Activities   X X
Learning Disability   X X
Mental/Emotional Disorders or Symptoms X X X
Cognitive Impairment or Developmental Disorders      
Social Participation/Interpersonal Interactions      
Substance Use/Abuse/Dependence X X X
Specific Chronic Conditions/Medical Conditions X X X
Use of/Need for Assistive Equipment   X X
Use of or Need for Personal Assistance      
Bed Days/Lost Productivity Days      
Disability Benefit Receipt/Program Participation X X X
Self/Others Identify as Disabled   X X
Topic Domains
Education   X X
Employment   X X
Health X X X
Health/Disability-Related Service Use X X X
Health Insurance X    
Household Expenditures      
Housing   X X
Income/Economic Well-Being   X X
Public Program Participation X X X
Transportation      

Table Notes:

  1. Group not eligible for initial selection, existing sample members were followed if they entered the group.

  2. As of 2007, the survey of metropolitan areas is conducted annually, cycling through a set of 21 areas about every six years.

  3. Disability questions changed in 2008.

  4. Respondents can answer that they are disabled in response to a question about their work status.

  5. Question in 2009 AHS is not specific. The 1978 survey allows respondents to specify conditions.

  6. Question is not specific.

  7. Income questions are only asked of those who changed jobs or became employed since the final Current Population Survey (CPS) interview. Income for all others is imputed from the CPS.

  8. Sample excludes military personnel living on base.

  9. Disability information, except for work disability, is not available at state or regional levels, due to small sample sizes.

  10. Only available for the insurance component of the survey.

  11. Disability information, except for work disability, is not available at state or regional levels, due to small sample sizes.

  12. Only available for the insurance component of the survey.

  13. In the interview survey of the CE.

  14. Disability payments are grouped with other types of income.

  15. In supplements only.

  16. In the diary survey of the CE.

  17. A study of Hispanic populations (HHANES) was conducted in 1982-84.

  18. Regional estimates are provided from 1979-2004 for counties selected for the National Crime Victimization Survey (NCVS) sample in the 40 largest metropolitan statistical areas.

  19. Different modules are fielded in different years, so the time span covered varies by topic.

  20. A national longitudinal study, the National Health and Nutrition Examination Survey (NHANES) I Epidemiologic Follow-up Study, was jointly initiated by National Center for Health Statistics and NIA in collaboration with other agencies from 1982-1992.

  21. In the NCVS crime report, asked if the respondent reports a crime in the initial questionnaire.

  22. Only in NHANES III and Continuous NHANES.

  23. Only in Continuous NHANES.

  24. Those who are described as away at school or away in the armed forces are eligible for sampling.

  25. The Panel Study of Income Dynamics (PSID) uses two independent samples. One is a national sample of low-income families.

  26. Access to care data are available from 1991 to 2008. The cost and use data are available from 1992 to 2006.

  27. Supplement on Aging (SOA) I and II.

  28. SOA II.

  29. Questions included in the SOA I and II and the Longitudinal Study of Aging (LSOA) II. Baseline survey collects information on any instances of difficulty remembering or confusion. LSOA II includes a section with questions about cognitive abilities.

  30. SOA II includes detailed questions on both home and personal assistive devices.

  31. Detailed questions on household expenditures are included in the economic supplement.

  32. Transportation to and from medical care.

  33. The National Comorbidity (NCS; 1990-1992) includes a supplemental sample of students living in campus group housing.

  34. NCS (1990-1992) surveyed persons age 15-54; NCS-A (2001-2002) surveyed persons age 13-17.

  35. Only selected Ticket to Work participant samples were followed longitudinally.

  36. Information appears in core NHIS, not in the NHIS-D (National Health Interview Survey on Disability).

  37. In NCS-R only.

  38. In NCS-2 and NCS-R only.

  39. Asked of respondents age 17 and younger.

  40. Asked only about children with physical delays.

  41. In Phase 2 of the NHIS-D only.

  42. Unknown.

  43. The sample only includes 7th-12th graders in schools including an 11th grade with a minimum enrollment of 30 students. Certain populations are oversampled.

  44. People who complete an undergraduate degree.

  45. First-time enrollees in a postsecondary education institution.

  46. Asked on the B&B:93/03.

  47. Employment of parents.

  48. The BPS includes a question about Vocational Rehabilitation service usage. BPS:90/94 does not include this question.

  49. The BPS:96/01. Includes a question about receiving or requesting services for handicapped parking or special transportation.

  50. Youth were eligible if they were away at school or in a correctional institution or hospital if they were tied to a sampled household.

  51. Only 9th graders in high school were selected to be in the sample.

  52. The Survey of Inmates in State Correctional Facilities (SISCF) covers 1974-2004; the Survey of Inmates in Federal Correctional Facilities (SIFCF) covers 1991-2004.

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