Analysis of State Actions Regarding Donor Registries. METHODS


The Lewin Group conducted a thorough search for information about donor registries, advance directives, and informed consent (see Appendix A). Our search involved using the legislative search engine of the Health Policy Tracking Service of the National Conference of State Legislatures, search engines (if available) of individual states, and other sources via the World Wide Web. We also searched the DIALOG database (legislative and legal citations) for relevant articles in gray literature. Other sources included the Louisiana Organ Procurement Agency 1997 Report of State Legislation, covering state actions from the early 1990s to 1997, as well as documentation provided by registry representatives from the states in attendance of the conference, "Are Donor Registries Advance Directives?: Developing, Linking, Modifying Statewide Donor Registries," held in New Orleans, Louisiana, July 27-28, 1999 (see Appendix B). Lastly, the members of the Association of Organ Procurement Organizations were polled and solicited to submit copies of legislation each was utilizing to support development of local donor registries.