Analysis of State Actions Regarding Donor Registries. Evaluation


Evaluation is necessary to ensure that efforts to develop registries or improve other aspects of the donation process are effective and useful. Nine states are currently evaluating various aspects of the donation process. The common goal of these evaluations is to understand how well public education initiatives and donor registry programs are being implemented (i.e., process evaluation), and to determine if these efforts are effective at increasing public awareness, and ultimately, donation rates (i.e., outcome evaluation).

  • Arkansas conducts ongoing analyses of donor registrant demographics and audience-specific effectiveness of the state’s television advertisement campaign.
  • Hawaii enacted a law that, among other provisions, established an advisory committee on anatomical gifts within its department of health and requires hospitals to allow death record reviews.
  • Louisiana recently passed two resolutions, one geared toward studying the feasibility of paying the bereaved family’s funeral expenses, and a second designed to study the impact of coroner activities on donation. In addition, the Louisiana OPO is funded by the National Institutes of Health (NIH) to conduct an analysis of division of motor vehicles data from the Louisiana State registry, to study a new consent model, and to track the effects of its multimedia advertisement campaign. Housing of the registry within the OPO facilitates tracking the impact of registering donors and use of the registry in actual donations.
  • Missouri conducted the "Arc Survey," which probed public awareness regarding the donation process.
  • North Carolina passed a law that directed the state’s department of health and human services to study the development of statewide donor registries. The state also is evaluating the effect of "postcard" reminders for driver’s license renewal that contain organ donation information.
  • Ohio intends to measure the relationship between a general willingness to donate and public education.
  • Rhode Island recently accepted a measure to extend a Special State House Commission that is in the process of studying organ donation.
  • Texas passed a law creating a public task force that will report in December 2000 on issues relating to organ allocation.
  • Virginia passed two resolutions, one stipulating the development of plans to increase public awareness of organ donation, and another requiring a Joint Commission on Health Care to look at other organ donation issues.