Analysis of State Actions Regarding Donor Registries. Access to Registry Information

01/04/2000

Because access to registry information is closely tied to public concern over protecting privacy, access must be limited only to those with the proper authority to view the information. Further, a mechanism must be in place to confirm that those individuals accessing the registry database are authorized to do so. Universal agreement does not exist for who should have access to a state donor registry data, or the most efficient method for accessing information from the database. States concur that OPOs should have access, but the extent to which hospital staff, tissue and eye bank personnel, and law enforcement personnel should have access remains unresolved. Several types of state actions have been implemented addressing these issues.

  • Arkansas, Florida, Georgia, Hawaii, Illinois, Louisiana, Pennsylvania, and Tennessee have passed provisions that ensure 24-hour access to the divisions of motor vehicles’ donor registries via a toll-free 800-number number or through the World Wide Web.
  • In Indiana, registry information is accessible only to law enforcement personnel.
  • In the District of Columbia and Maryland, OPOs are able to call the state police to check donor status 24 hours a day.
  • In Missouri, OPOs and eye banks have only limited access to registry information.