We are interested in understanding better your process for data collection.
- Who handles the program’s data management duties?
Please describe how the program collects and tracks client-level demographic, service use, and program outcome data, including HIV/AIDS status?
- What data elements are collected, how frequently, using what data forms?
- Do the data include health outcomes? If so, what health outcomes are reported?
- In what data systems are the data stored and accessed?
- How would you describe the quality of the data, particularly, the data on clients’ service use and outcomes?
- Is the HIV/AIDS status data based on self-report, staff report, or a combination?
Now, I would like to talk about the ways that the Health Planning Council makes use of client-level SPNS program data.
How does the program use client-level demographic, service use, and/or outcome data in service planning, program monitoring, evaluation, or quality improvement? Please explain and provide examples.
- Client Characteristics. Age, gender, race/ethnicity, other demographics, chronic homelessness, prior living situations.
- Client Service Needs. Basic income needs, housing, employment, food, mental health, substance use, access to insurance and to a primary care provider.
- Housing Service Utilization and Outcomes. Avoidance of homelessness, use of transitional housing, housing stability and permanency.
- HIV Medical Care Utilization and Outcomes. Health insurance status, designated primary care provider, ongoing engagement in care, ART medication adherence, suppression of viral load.
- Can your program’s information system(s) be used to generate planning reports? If so, please describe the reports.
- Has the program’s data system been used to tabulate outcomes by demographic characteristics and/or HIV/AIDS status? If so, how often have reports been generated and used?
In general, are there efforts to share aggregate and client-level data with partner agencies? If so, who are these partner agencies, what information is shared, how often, and for what reasons?
- Are housing indicators and/or outcomes data shared with these partners? Please describe.
- Are HIV clinical care indictors and/or outcomes data shared with these partners? Please describe.
- [If reports are generated] Are reports shared with external partners/agencies/providers? If so, which reports are shared and how frequently?
- How regularly do program staff members connect with these other agencies about data issues and/or findings?
- Do these efforts require formal coordination of shared activities with partner agencies? For what purpose [PROBES: to prevent duplication efforts and ensure data quality among agencies]?
- In your efforts to share data, have you developed shared goals and/or protocols with outside partners?
- To facilitate data partnerships with outside agencies, have you made changes in the way the program collects, uses, and shares data?