This report describes insights gained from key informant interviews and an ASPE-hosted listening session on short-term opportunities for improving patient-centered outcomes research (PCOR) data infrastructure that addresses the needs of individuals with intellectual and developmental disabilities (ID/DD).
Related Products:
Long-Term Services & Supports, Long-Term Care
ASPE conducts research, analysis, and evaluation of policies related to the long-term care and personal assistance needs of people of all ages with chronic disabilities. ASPE’s work also highlights the financing, delivery, organization, and quality of long-term services and supports, including those supported or financed by private insurers, Medicaid, Medicare, and the Administration for Community Living (ACL). This includes assessing the interaction between health care, post-acute care, chronic care, long-term care, and supportive services needs of persons with disabilities across the age spectrum; determining service use and program participation patterns; and coordinating the development of long-term care data and policies that affect the characteristics, circumstances, and needs of people with long-term care needs, including older adults and people with disabilities.
Noteworthy
Most Older Adults Are Likely to Need and Use Long-Term Services and Supports
More than one-half of older adults, regardless of their lifetime earnings, are projected to experience serious LTSS needs and use some paid LTSS after turning 65.
Older adults with limited lifetime earnings are more likely to develop serious LTSS needs than those with more earnings.
However, fifty-six percent of older adults in the top lifetime earnings quintile receive some paid LTSS, and the likelihood of nursing home care does not vary much by lifetime earnings. Learn more.
Reports
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How Increased Funding Can Advance the Mission of the Indian Health Service to Improve Health Outcomes for American Indians and Alaska Natives
This ASPE report discusses disparities in health and health care experienced by American Indian and Alaska Native (AI/AN) populations, the role of the federal government in financing and providing health care services to these populations, and how enhanced funding could help further the Indian Health Service’s mission in ensuring that tribal communities have access to high quality health care s
Report to Congress
Report to Congress: Unified Payment for Medicare-Covered Post-Acute Care
The Improving Post-Acute Care Transformation (IMPACT) Act of 2014 requires a report to Congress on unified payment for Medicare post-acute care (PAC). Medicare PAC providers are skilled nursing facilities, inpatient rehabilitation facilities, long-term care hospitals, and home health agencies. Each PAC provider setting has a separate Medicare fee-for-service prospective payment system.
Research Brief
Changes in Ownership of Skilled Nursing Facilities from 2016 to 2021: Variations by Geographic Location and Quality
Newly released CMS skilled nursing facilities (SNF) Change of Ownership data (CHOW) data allows for a better understanding of how the nursing home ownership financial structures are changing. A total of 3,258 SNFs have been sold since 2016. Roughly 3.5% of skilled nursing facilities are sold in the US each year since then.
ASPE Issue Brief
Federal Efforts to Address Racial and Ethnic Disparities in Alzheimer’s Disease and Related Dementias
The National Alzheimer’s Project Act (NAPA) requires “the inclusion of ethnic and racial populations at higher risk for Alzheimer's or least likely to receive care, in clinical, research, and service efforts with the purpose of decreasing health disparities in Alzheimer's”.1 In order to meet this requirement, in 2020 the Advisory Council on Alzheimer’s Research, Care, and Services recommended t
Report
Mitigating Direct Care Workforce Injuries in Homecare: A Summary of the Evidence
Due to the increasing demand for homecare workers and the high rate of occupational injuries among these workers, addressing homecare worker safety is critically important. High injury rates among homecare workers contribute to turnover and absenteeism, and lead to high costs of workers’ compensation insurance for employers.
ASPE Issue Brief
Connecting Youth During the COVID-19 Pandemic
This infographic explores the impact the COVID-19 pandemic had on programs that support young people, ages 16-24, who experience disconnection from school and work, often referred to as "opportunity youth." It provides an overview of which education, job training, and supportive services, in addition to enrollment and implementation practices were added or ended during the first year (spring 20
ASPE Data Point
Hospitalization Cost Savings Associated with COVID-19 Vaccinations Among Medicare Beneficiaries in Early 2021
Using Medicare FFS claims data and county-level vaccination rates, we estimate savings of about $2.6 billion from reduced Medicare hospitalizations associated with COVID-19 vaccinations in early 2021.
ASPE Issue Brief
Impact of the COVID-19 Pandemic on the Hospital and Outpatient Clinician Workforce: Challenges and Policy Responses
The COVID-19 pandemic has put extreme stress on the health care workforce in the United States, leading to workforce shortages as well as increased health care worker burnout, exhaustion, and trauma.
Environmental Scan
Continuity of Care Services Following Coordinated Specialty Care: An Environmental Scan
This report provides an overview of transition services for clients graduating from Coordinated Specialty Care (CSC). CSC Programs have been successfully implemented across the US, including through support from the Community Mental Health Services Block Grant set aside funds for people with early psychosis.