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Data

ASPE uses and produces data as key components of its work. ASPE studies and assesses data and how it is captured, managed, analyzed and protected, including the interplay of the sources, systems, standards for data that support policy, practice and research. 

ASPE also co-chairs the HHS Data Council, which is the principal internal advisory body to the Secretary on health and human services data policy. The Council coordinates data policy activities in HHS, including the development and implementation of an HHS data strategy, and conducts research to improve long-term collection and use of HHS data. 

ASPE’s work involves many types of data produced by HHS and other governmental programs and other partners. For example: 

  • Through its Foundations for Evidence-Based Policies Act of 2018 (“Evidence Act”) and Data Council responsibilities, ASPE leads HHS efforts to improve the quality and accessibility of its data assets.
  • Through its investments under the aegis of the Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF), ASPE supports interoperability through such products as linked datasets involving mortality data, HL7 implementation guides in support of FHIR for research use of electronic health records, claims and other data, and natural language processing approaches.
  • Through the use of ASPE-developed supplemental data tables, ASPE has developed issue brief series examining options before and after the passage of the American Rescue Plan Act of 2021 (ARP).
  • Through its issue briefs such as this brief on Medicare Telehealth utilization trends, ASPE provides unique and timely data and analyses on important policy issues.
  • Pursuant to the Social Security Act, ASPE annually calculates and publishes the Federal Medical Assistance Percentage (FMAP), enhanced Federal Medicaid Assistance Percentage (e-FMAP), and disaster-recovery FMAP for all states, the District of Columbia, and territories. The FMAP is used to determine federal funding for Medicaid/CHIP, Temporary Assistance for Needy Families (TANF) Contingency Funds, and other public programs. The FY 2022 FMAP notice was published in the Federal Register on November 30, 2020.

Reports

Displaying 511 - 520 of 612. 10 per page. Page 52.

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Analysis of State Actions Regarding Donor Registries

The Lewin Group, Inc. for the Office of the Assistant Secretary for Planning and Evaluation

Performance Improvement 2000

ForewordPerformance Improvement 2000: Evaluation Activities of the U.S. Department of Health and Human Services is the sixth annual report to Congress summarizing previous fiscal year evaluation efforts. The purpose of this report is to provide Congress with evaluative information on the Department’s programs, policies, activities, and strategies.

A National Study of Assisted Living for the Frail Elderly: Results of a National Survey of Facilities

This report presents data from a telephone survey of the administrators of assisted living facilities across the country. These facilities were selected from a national probability sample of all facilities that met the criteria for inclusion in the study. Thus, the findings are representative of the industry as a whole.

NRPM: Standards for Privacy of Individually Identifiable Health Information

Federal Register: November 3, 1999 [Proposed Rules] [Pages 59918-60065] [DOCID:fr03no99P] DEPARTMENT OF HEALTH AND HUMAN SERVICES Office of the Secretary 45 CFR Parts 160 through 164 Rin: 0991-AB08

A National Study of Assisted Living for the Frail Elderly: Discharged Residents Telephone Survey Data Collection and Sampling Report

The Research Triangle Institute (RTI) conducted the Discharged Residents Survey for ASPE through a subcontract with Myers Research Institute (MRI). The survey was administered during June and July 1999. This report documents the data collection activities undertaken by RTI for the survey.

Proposed Standards for Privacy of Individually Identifiable Health Information

Statutory RequirementSection 264 of the Health Insurance Portability and Accountability Act of 1996 (HIPAA), Public Law 104-191, enacted August 21, 1996, requires that, if legislation establishing privacy standards is not enacted “by the date that is 36 months after the date of the enactment of this Act, the Secretary of Health and Human Services shall promulgate final regulations cont