Reports

This compendium is published by the Division of Children and Youth Policy within the Office of the Assistant Secretary for Planning and Evaluation. It summarizes the results of the Division’s research projects from 1986 through the present and highlights future plans.

This paper compares the health characteristics (health status, health insurance coverage, use of physician and hospital care, and cost of care) of persons with and without disabilities. Three separate analyses are included: one on children, one on working age adults (aged 18-64), and one on the elderly. Various levels of functional disability are also examined.

This report analyzed data on all pediatric hospitalizations of $25,000 or more in California to determine the relationship between source of payment and various characteristics, including age and diagnosis. [39 PDF pages]

U.S. Department of Health and Human Services

U.S. Department of Health and Human Services The Disabled: Their Health Care and Health Insurance Michele Adler August 1990 PDF Version

U.S. Department of Health and Human Services Who Is Paying the Big Bills Very High Cost Pediatric Hospitalizations in California, 1987 Leighton Ku SysteMetrics/McGraw-Hill August 1990 PDF Version

This analysis compares predictors of institutional residency in 1977 and 1985 among two national cohorts of individuals who responded to national surveys of nursing home and community-dwelling elderly persons. A state-level analysis of change in predictors of state nursing home use rates for 1976 and 1986 was also conducted using aggregate state sociodemographic and Medicaid policy variables.

U.S. Department of Health and Human Services

This paper was prepared as part of the Project to Design a Survey of Persons with Developmental Disabilities. The overall purpose of this project was to develop a national survey design that would provide data on a nationally representative sample of persons. This paper was conducted to develop a National Survey of Mentally Retarded and Developmentally Disabled Persons in Community Settings.

U.S. Department of Health and Human Services

This report analyzed the 1984 Medicaid experience of all children passing the Supplemental Security Income (SSI) disability test in California, Georgia, and Michigan to determine the enrollment, utilization, and expenditure patterns of these children. The study estimated the proportion of Medicaid expenditures attributable to SSI-related disabled children. [33 PDF pages]

U.S. Department of Health and Human Services SSI-Related Disabled Children and Medicaid Marilyn Rymer Ellwood SysteMetrics/McGraw-Hill June 1990 PDF Version

Pat Doyle, Esther Miller and Jim Sears Mathematica Policy Research, Inc. This report was prepared under contract #HHS-88-0047 between the U.S. Department of Health and Human Services (HHS) Office of Social Services Policy (now DALTCP) and Mathematica Policy Research, Inc.

This report contains information on the extent to which persons with disabilities rely on federal programs, based on the 1984 Survey of Income and Program Participation. Information on multiple program participation is also presented. The different levels of functional disability derived in Task I (Population Profile of Disability) are used. [87 PDF pages]

This is a body of research on families that are enduring, cohesive, affectionate, and mutually-appreciative, and in which family members communicate with one another frequently and fruitfully. They are families that raise children who go on to form successful families themselves. They are not necessarily families that are trouble-free.

The study of family strengths has been pursued by researchers from a variety of disciplines, including psychiatry, sociology, psychology, and family/marriage counseling.

U.S. Department of Health and Human Services Program Participation Patterns Among Persons with Disabilities Pat Doyle, Esther Miller and Jim Sears Mathematica Policy Research, Inc. May 10, 1990 PDF Version: http://aspe.hhs.gov/daltcp/reports/1990/task3.pdf (87 PDF pages)

U.S. Department of Health and Human Services Research on Successful Families Maria Krysan, Kristin A. Moore and Nicholas Zill Child Trends May 10, 1990 PDF Version

U.S. Department of Health and Human Services

This report examines the child care preferences of 382 mothers with children under age six who received Aid to Families with Dependent Children during the 14-month period beginning September 1983. The project included interviewing these women twice and using models to predict their satisfaction with child care arrangements.

This study investigates factors associated with changes in the child care arrangements of Aid to Families with Dependent Children (AFDC) recipients. To conduct the study, the authors interviewed a sample of AFDC recipients in 1984 and 1985, examined welfare case records, and developed models predicting AFDC mothers' transitions into and out of child care.

U.S. Department of Health and Human Services

Douglas Wolf and Freya Sonenstein The Urban Institute May 1990 PDF Version

This paper was presented at the National Council on Aging Annual Meeting, April 1990. As the U.S. debates reform of long-term care financing, examining other countries' approaches to long-term care for the elderly can help expand the range of reform options for consideration.

U.S. Department of Health and Human Services

Head Start programs provide comprehensive child development, educational, health, nutritional, social and other services to predominantly low income preschool children and their families.

U.S. Department of Health and Human Services

Alberto Martini Mathematica Policy Research, Inc. This report was prepared under contract #HHS-88-0047 between the U.S. Department of Health and Human Services (HHS) and Mathematica Policy Research. SysteMetrics/McGraw-Hill was a subcontractor for the project.

U.S. Department of Health and Human Services

This study investigated factors associated with the decisions of principal informal caregivers of the activity of daily living (ADL) dependent elderly living in the community to end caregiving. Data were from the 1982 National Long-Term Care Survey (NLTCS), the 1982 Informal Caregiver Survey and 1984 NLTCS Longitudinal Follow-up.

U.S. Department of Health and Human Services

This report provides an overview of the major federal assistance programs targeted on non-elderly persons with disabilities. Program descriptions include expenditures, trends, the number and characteristics of recipients, eligibility rules, recent program history and legislative changes, and interactions with other federal programs.

The activities of daily living (ADLs) are the basic tasks of everyday life. Reported estimates of the size of the elderly population with ADL disabilities differ substantially across national surveys. Differences in which ADL items are being measured and in what constitutes a disability account for much of the variation.

In spite of the growth in federal programs affecting the developmentally disabled, there is little comprehensive information about this population. The Survey of Income and Program Participation (SIPP) is one available source of information. SIPP is a nationally representative longitudinal survey of the adult civilian non-institutionalized population in the U.S.

An analysis was made of the pre and post-patterns of Medicare Part A service use using the samples of the 1982 and 1984 National Long-Term Care Surveys linked to the Medicare Part A bill files and mortality reports.

This article compares the organization and financing of long-term care for the elderly in the U.S. with that of other advanced industrial countries.

U.S. Department of Health and Human Services

U.S. Department of Health and Human Services

U.S. Department of Health and Human Services Dispelling Some Myths: A Comparison of Long-Term Care Financing in the U.S. and Other Nations Pamela Doty 1990 PDF Version

U.S. Department of Health and Human Services

U.S. Department of Health and Human Services

This report presents selected statistics gathered on residential facilities designated as mental retardation facilities and their residents as part of the 1987 National Medical Expenditure Survey Institutional Population Component (NMES/IPC).

AbstractThis report presents selected statistics gathered on residential facilities designated as mental retardation facilities and on the residents of those facilities as part of the Institutional Population Component of the 1987 National Medical Expenditure Survey (NMES). The report is divided into 4 parts.

This document contains brief summaries of recommendations for survey items to be included in the Survey of Persons with Mental Retardation and Developmental Disabilities. The domains covered by these recommendations are based on the core set identified in consultation with the Technical Advisory Group and HHS. [49 PDF pages]

U.S. Department of Health and Human Services

Approximately 800 HIV-infected children nationally were in foster care placement as of June 1989. This study was designed to define the specific problems related to providing foster care to children with HIV infection.

U.S. Department of Health and Human Services A Report on Infants and Children with HIV Infection in Foster Care November 14, 1989 PDF Version

This study assessed a variety of longitudinal models to examine the effect of different types of caregiver burden on outcomes important to policymakers: nursing home admissions, hospital use, and stability of the family and formal care networks.

This paper discusses the policy implications of allocating long-term care benefits to the elderly on the basis of objective functional criteria, particularly functioning in the activities of daily living (ADLs).

This paper was presented at the 42nd Annual Meeting of the Gerontological Society of America, November 17-21, 1989. It focuses on several problems associated with making estimates using activities of daily living and highlights some of the methodological work carried out or sponsored by HHS to overcome these problems. [14 PDF pages]