The Advisory Council on Alzheimer's Research, Care, and Services meets quarterly to discuss programs that impact people with Alzheimer's disease and related dementias (AD/ADRD) and their caregivers. Representatives from agencies and organizations that work with dementia treatment and care are invited to present information to the Advisory Council. The public is also given time at each meeting to provide first-hand information of their day-to-day experience.
This section provides the information available for each Advisory Council meeting.
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During the meeting, the Advisory Council will hear presentations on access to long-term services and supports as well as end-of-life challenges for people living with ADRD. Federal agencies will provide updates including a presentation from the Administration for Community Living on the new National Strategy to Support Family Caregivers. Material available from this meeting are listed below:
During the meeting, the Advisory Council heard updates from federal workgroups on efforts undertaken in the last quarter and an overview of the National Institutes of Health budget for Alzheimer’s disease and related dementias (ADRD) research. The National Institute on Aging gave a presentation on their Resource Centers for Minority Aging Research (RCMAR) program. The Advisory Council’s research, clinical care, long-term services and supports, and risk reduction subcommittees presented recommendations and the Council voted on adopting them. Material available from this meeting are listed below:
- Update on National Plan Anniversary Activities
- Federal Efforts to Address Racial and Ethnic Disparities in Alzheimer’s Disease and Related Dementias
- FY 2024 Bypass Budget
- Federal Agency Updates
- DOJ Elder Justice Efforts
- National Institute on Aging’s Alzheimer’s-related Resource Centers for Minority Aging Research Program
- Tracking National Plan Progress: Examples from Healthy People 2030
- Subcommittee 2022 Recommendations
- "Welcome" through "DOJ Elder Justice Efforts"
- "Enhancing the Diversity of Aging RCMAR Program" through "Tracking National Plan Progress"
- "2022 Recommendations" through "Adjourn"
During this meeting, the Advisory Council celebrated accomplishments since the release of the first National Plan to Address Alzheimer’s Disease in May 2012. On May 2, the Advisory Council heard panel presentations on recent research on biomarkers and therapeutics. On May 3, the Dementia Nomenclature Initiative presented an update to the Advisory Council, and there was a panel of presentations about dementia risk reduction. Material available from this meeting are listed below:
- National Plan to Address Alzheimer’s Disease: Celebrating 10 Years
- Opportunities to Optimize Management and Care for People with Dementia
- NAPA Scientific Research Subcommittee: Scientific Advances to 2025 Goal
- Fluid Biomarkers of Alzheimer’s Disease
- Imaging Biomarkers for Alzheimer’s Disease
- Emerging Experimental Therapeutics in Alzheimer’s Disease: Monoclonal Antibodies to Amyloid and Beyond
- Progress Update: Dementia Nomenclature Initiative
- Measuring and Assessing Progress on Goal 6
- BOLD Public Health Center of Excellence on Dementia Risk Reduction
- Addressing and Taking Action on Risk Factors--An AAA Response
- Risk Reduction Subcommittee – Mind Your Risks
- Preventing 1 Million Heart Attacks and Strokes by 2027
- Lessons Learned from Hypertension Program in Kaiser Permanente Northern California
- Day 1 – Welcome through the “Opportunities to Optimize Management” presentation
- Day 1 – Research Panel through the Concluding Remarks
- Day 2 – Welcome through Panel 1 on Risk Factors
- Day 2 – Panel 2 on Lessons Learned through the Concluding Remarks
During this meeting, the Advisory Council heard about the National Plan to Address Alzheimer’s Disease: 2021 Update, as well as updates from federal agencies. The Advisory Council also heard presentations about dementia risk reduction for veterans, and research on the potential relationship between COVID-19 and dementia. The Advisory Council also heard about a recent report on the current capacity of the dementia care workforce. A panel presented on dementia assessment tools for special populations, such as individuals with intellectual and developmental disabilities. Finally, the Advisory Council heard from a panel on the inclusion of caregivers in clinical care settings, including those in rural communities. Material available from this meeting are listed below:
- Federal Agencies Updates
- National Plan to Address Alzheimer’s Disease: 2021 Update
- Long-Term Impact of Military-Relevant Brain Injury Consortium--Chronic Effects of Neurotrauma Consortium
- Capacity of Dementia Specialists
- Barriers to and Recommendations for Addressing Dementia Assessment Challenges with Adults with Neuroatypical Conditions
- Assessment Issues in Detecting Cognitive Impairment Among Persons with Intellectual Disabilities
- Assessment of New-Onset Decline in SMI
- Improving Lives of Rural Residents Who Face Dementia Disparities
- Enhancing Support for Caregivers of Veterans
- Welcome through the “National Plan” presentation
- “Identifying Risk Factors for Dementia” presentation through the “Capacity of the Dementia Specialists” presentation
- “Barriers to and Recommendations for Addressing Dementia: presentation through the “Improving Lives of Rural Residents” presentation
- “Enhancing Support for Caregivers of Veterans” presentation through the Concluding Remarks