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The Growing Availability of Electronic Health Data

The Feasibility of Using Electronic Health Data for Research on Small Populations. The Growing Availability of Electronic Health Data

For electronic health records to help solve the challenges of conducting research on small n populations, several conditions need to be present. The first is a critical level of adoption of relatively advanced EHRs by a range of providers (e.g., primary care physicians, specialists, hospitals, laboratory, and pharmacy) so that information about su
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The Need for Research on Small Populations

The Feasibility of Using Electronic Health Data for Research on Small Populations. The Need for Research on Small Populations

Research has found differences among segments of the population on nearly all aspects of health and health care. The ability to identify and document such differences is an essential starting point for improving people’s health. The four small populations that we selected illustrate a range of unanswered health and health care questions as well
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Introduction to Part II

The Feasibility of Using Electronic Health Data for Research on Small Populations. Introduction to Part II

Patients’ health records and other electronic health information are an essential part of care, documenting critical issues such as their history, preventive care, diagnostic tests, and diagnoses and treatments over time. Health records also facilitate information sharing among physicians, other health professionals, and provider organizations t
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Extent of coverage in current federal data

The Feasibility of Using Electronic Health Data for Research on Small Populations. Extent of coverage in current federal data collection activities

Existing data collection efforts have several foci and purposes, and their strategies reflect the challenges just mentioned. The Centers for Disease Control and Prevention collect data about the prevalence of ASDs through 14 sites in the Autism Developmental Disabilities Monitoring Network, which identify 8-year-old children with ASDs and other de
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Transition to adulthood

The Feasibility of Using Electronic Health Data for Research on Small Populations. Transition to adulthood

Most research on ASDs focuses on the identification, assessment, and treatment of children. Few studies examine their transition into the adult world. 128 The health care transition between adolescence and adulthood requires planning in order to maximize lifelong functioning and well-being. This process would ideally include ensuring uninterrupte
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Health and health care issues

The Feasibility of Using Electronic Health Data for Research on Small Populations. Health and health care issues

Among children with various developmental disabilities, autism has been found associated with the highest levels of health and functional impairment indicators.
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The Growing Availability of Electronic Health Data

The Feasibility of Using Electronic Health Data for Research on Small Populations. The Growing Availability of Electronic Health Data

The Institute of Medicine sees EHRs as an essential part of a “learning health care system,” and many believe they are critical for the success of medical homes, accountable care organizations, and other provider payment and delivery system reforms resulting from the Affordable Care Act. The use of EHR data for research depends first of all on
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The Affordable Care Act and Caregivers

The Affordable Care Act and Caregivers Research Brief

July 2015 Allison Carbonaro and Helen Lamont Office of the Assistant Secretary for Planning and Evaluation
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What Factors Affect Residential Care Facility

What Factors Affect Residential Care Facility Charges?

What Factors Affect Residential Care Facility Charges? Executive Summary September 2014 Sarita L. Karon, PhD, Joshua M. Wiener, PhD, Angela M. Greene, MS, MBA, Galina Khatutsky, MS, and Ruby Johnson, MA, MS RTI International Abstract
Strategies for Measuring the Quality of

Strategies for Measuring the Quality of Psychotherapy: A White Paper to Inform Measure Development and Implementation

Strategies for Measuring the Quality of Psychotherapy: A White Paper to Inform Measure Development and Implementation Executive Summary May 15, 2014 Jonathan Brown, Sarah Hudson Scholle and Melissa Azur Mathematica Policy Research Abstract
Strategies for Integrating and Coordinating Care

Strategies for Integrating and Coordinating Care for Behavioral Health Populations: Case Studies of Four States

Strategies for Integrating and Coordinating Care for Behavioral Health Populations: Case Studies of Four States Executive Summary Kristin Andrews, Jonathan D. Brown, Tara Ferragamo, Rebecca Kleinman, Rebecca Newsham, and Allison Wishon Siegwarth Mathematica Policy Research January 2014  
Long-Term and Post-Acute Care Providers Engaged

Long-Term and Post-Acute Care Providers Engaged in Health Information Exchange: Final Report

Long-Term and Post-Acute Care Providers Engaged in Health Information Exchange: Final Report Executive Summary Colene Byrne, Ph.D. Westat Michelle Dougherty, MA, RHIA AHIMA Foundation October 29, 2013
Early Intervention Financing and Resources: Final

Early Intervention Financing and Resources: Final Report

Evaluation of Parity in the Federal Employees

Evaluation of Parity in the Federal Employees Health Benefits (FEHB) Program: Final Report

In January 2001, the Federal Employees Health Benefits (FEHB) Program, the largest employer-sponsored health insurance program in the Nation, instituted a mental health and substance abuse (MH/SA) parity policy in compliance with an earlier Presidential directive. This policy mandated that MH/SA services would be covered to the same extent as gene
Prescription Drug Coverage, Spending, Utilization

Prescription Drug Coverage, Spending, Utilization, and Prices

Prescription drugs play an ever-increasing role in modern medicine. New medications are improving health outcomes and quality of life, replacing surgery and other invasive treatments, and quickening recovery for patients who receive these treatments. As important as prescription drugs are, not everyone has access to them. The newest drugs are ofte
Privacy Issues in Mental Health and Substance

Privacy Issues in Mental Health and Substance Abuse Treatment: Information Sharing Between Providers and Managed Care Organizations: Final Report

Effective psychotherapydepends upon an atmosphere of confidence and trust in which the patient is willing to make a frank and complete disclosure of facts, emotions, memories, and fears. Jaffe vs. Redmond, US Supreme Court, 1996
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III. Types of Information Disseminated by NIH to

HHS Guidelines for Ensuring and Maximizing the Quality, Objectivity, Utility, and Integrity of Information Disseminated to the Public. III. Types of Information Disseminated by NIH to the Public

Each year, NIH components produce 400 or more publications of various types, and about 140,000 static Web pages. All publications that carry the NIH imprimatur, i.e. are considered official NIH publications or releases, must follow NIH policy and procedures for preparation, review, approval, and distribution (see Section V). The types of informati
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HHS Guidelines for Ensuring and Maximizing the

HHS Guidelines for Ensuring and Maximizing the Quality, Objectivity, Utility, and Integrity of Information Disseminated to the Public

This site describes the HHS Information Quality Guidelines as well as the supporting administrative mechanisms to request correction of information covered under the guidelines. The HHS Guidelines were developed in accordance with the provisions of P.L. 106-554 and OMB government-wide requirements directing all federal agencies to issue guidelines
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Quality in Managed Long-Term Services and

Quality in Managed Long-Term Services and Supports Programs

This report explores how several states have designed their quality monitoring and improvement programs for managed long-term services and supports (MLTSS). The authors focus on the early adopters of MLTSS as well as those programs that are presented considered "established". The findings demonstrate how states take somewhat different approache
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E.3.6 Drug Sponsor-Imposed Barriers

Examination of Clinical Trial Costs and Barriers for Drug Development. E.3.6 Drug Sponsor-Imposed Barriers

Excessive risk-aversion leads to unnecessary steps being taken. In multicenter trials, uncertainty and inconsistent enrollment success across sites creates a need to over-enroll and plan trials “defensively.” Internal review processes for organizations conducting/sponsoring clinical trials can delay a trial’s start.

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