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B. Additional Laws, Regulations, and Agency-wide

Minimizing Disclosure Risk in HHS Open Data Initiatives. B. Additional Laws, Regulations, and Agency-wide Guidance

Appendix D contains background and details on several other laws related to privacy that are pertinent to federal agencies: the Family Educational Rights and Privacy Act of 1974, federal alcohol and drug confidentiality regulations, the Driver’s Privacy Protection Act, and proposed legislation regarding the resale of consumer information. The Ap
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2. Computer Matching and Privacy Protection Act

Minimizing Disclosure Risk in HHS Open Data Initiatives. 2. Computer Matching and Privacy Protection Act of 1988

The Computer Matching and Privacy Act of 1988 updated the language of the Privacy Act to address concerns about how agencies share and match data across agencies. Agencies must notify individuals at the time of data collection that the information provided could be used for matching purposes, and give individuals 30-days advance notice before taki
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A. Key Legislation

Minimizing Disclosure Risk in HHS Open Data Initiatives. A. Key Legislation

Several key pieces of federal legislation govern the types of personal information that government and other organizations, such as health providers and educational institutions, can disclose about individual citizens or consumers. Most privacy laws focus on an individual’s rights over the privacy of personal information—including ability to a
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A. Background

Minimizing Disclosure Risk in HHS Open Data Initiatives. A. Background

The Open Data Initiatives launched by the White House have as their goal making government information resources more accessible to the public in machine-readable form, and encouraging the use of such data by entrepreneurs to aid in the creation of new products, services, and jobs. However, there is concern that certain users of the datasets made
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Minimizing Disclosure Risk in HHS Open Data

Minimizing Disclosure Risk in HHS Open Data Initiatives

Federal agencies have a long history of releasing data to the public, and they also have a legal obligation to protect the confidentiality of the individuals and organizations from which the data were collected. Federal agencies have successfully balanced these two objectives for decades. With the new emphasis on expanding public access to federal
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How Do State Data Warehouses Support Child

Performance Improvement 2008. How Do State Data Warehouses Support Child Support Performance?

This case study gathered information about State child support enforcement office experiences with data warehouses. The study examined how data warehouses were used to help manage program operations, assess program effectiveness and efficiency, and inform policy development. The information was collected through telephone discussions and site visi
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Question Nine: What issues related to privacy and

Screening and Assessment in TANF\Welfare-to-Work: Ten Important Questions TANF Agencies and Their Partners Should Consider. Question Nine: What issues related to privacy and confidentiality should be considered?

In considering how to screen or assess for unobserved barriers, TANF agencies and their partners must consider the complex issues around privacy and confidentiality of information obtained through the identification process. A detailed assessment of these issues is beyond the scope of this report, 79 but, because of the importance of the issue, w
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The Feasibility of Using Electronic Health Data

The Feasibility of Using Electronic Health Data for Research on Small Populations

Background. Many small populations have distinctive health and health care needs but have been difficult to study in survey research. Objective. This report is part of a project funded by the Assistant Secretary for Planning and Evaluation to explore the feasibility of using electronic health record (EHR) and other electronic health data for resea
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Table 1. Costs of Developing, Implementing and

Table 1. Costs of Developing, Implementing and Maintaining A National Registry of Child Maltreatment Perpetrators

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Understanding the High Prevalence of Low-

Understanding the High Prevalence of Low-Prevalence Chronic Disease Combinations: Databases and Methods for Research

Final White Paper Contract # HHSP2333700IT September 20, 2013 Prepared for: James Sorace, MD, MS Michael Millman, PhD Assistant Secretary for Planning and Evaluation U.S. Department of Health & Human Services 200 Independence Ave. S.W. Washington, DC 20201
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Performance Improvement 2008

Performance Improvement 2008

This Performance Improvement series of reports takes its name from the primary goal of carrying out evaluations – to improve the performance of programs meant to serve the greatest needs of the community. Performance Improvement 2008, the latest of these reports, makes available the most recently completed evaluations of the Department of Health
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Screening and Assessment in TANF\Welfare-to-Work

Screening and Assessment in TANF\Welfare-to-Work: Ten Important Questions TANF Agencies and Their Partners Should Consider

This report discusses issues related to the development and use of screening and assessment practices to assist in the identification of disabilities and barriers to employment among TANF recipients. It is organized to address key questions that should be considered as states and localities grapple with the challenge of identifying the unobserved b
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