HHS Strategic Goals and Objectives - FY 2001 . Appendix A - Coordination
Many programs within the Department have goals, objectives, and target populations that appear similar. Likewise, many Department programs appear to duplicate or overlap programs in other Federal agencies. Many state, local, and private sector programs also have goals, objectives, and target populations in common with Department programs. Because
Privacy and Health Research
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A Report to the U.S. Secretary of Health and Human Services
OFFICE OF THE ASSISTANT SECRETARY
FOR PLANNING AND EVALUATION
Health Insurance Marketplace: Summary Enrollment Report For the Initial Annual Open Enrollment Period
ASPE Issue Brief, Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation (ASPE), May 1, 2014, which can be accessed at http://aspe.hhs.gov/health/reports/2014/MarketPlaceEnrollment/Apr2014/ib_2014apr_enrollment.pdf.
Personalized Health Care Expert Panel Meeting: Summary Report
Contents
Demonstrating Clinical Validity and Utility
Demonstrating Value
Reducing Health Disparities
Educating and Engaging Providers and Consumers
Using Databases to Build Evidence, Inform Decisions
Analysis of Supply, Distribution, Demand, and Access Issues Associated with Immune Globulin Intravenous (IGIV)
Contents
IGIV Supply and Distribution - Key Findings
IGIV Demand - Key Fundings
IGIV Access Problems- Key Fundings
Analysis and Proposed Actions Regarding the NBAC Report: Research Involving Persons with Mental Disorders That May Affect Decisionmaking Capacity
This document presents the findings and proposals of a multi-agency Working Group (WG) convened by the Office of Science Policy, Office of the Assistant Secretary for Planning and Evaluation to develop a proposed response by the Department of Health and Human Services (HHS) to the National Bioethics Advisory Commission (NBAC) Report entitled Rese
Understanding the High Prevalence of Low-Prevalence Chronic Disease Combinations: Databases and Methods for Research. Purpose of the Paper
The Assistant Secretary for Planning and Evaluation (APSE) Office of Science and Data Policy contracted Abt Associates to explore how the “long tail” of the MCC population can be appropriately studied. As a first step , ASPE wanted to identify and review the existing data sources that can be used to understand the population, and to describe
Minimizing Disclosure Risk in HHS Open Data Initiatives. References
Alexander, J. Trent, Michael Davern, and Betsey Stevenson. “Inaccurate Age and Sex Data in the Census PUMS Files: Evidence and Implications.” Public Opinion Quarterly , vol. 74, no. 3, Fall 2010, pp. 551-569.
Barth-Jones, Daniel C. “The ‘Re-identification of Governor William Weld’s Medical Information: A Critical Re-examination of Hea
Minimizing Disclosure Risk in HHS Open Data Initiatives. C. The Mosaic Effect
The “mosaic effect” is a new term in the literature on confidentiality. It received prominent mention in Memorandum M-13-13 from the Office of Management and Budget (OMB), “Open Data Policy—Managing Information as an Asset” (OMB 2013), but a search for the term in the database Google Scholar produced no relevant hits.
Minimizing Disclosure Risk in HHS Open Data Initiatives. I. INTRODUCTION 1
Recent open data initiatives by the Department of Health and Human Services (HHS) and the White House have encouraged the release of increasing numbers of datasets containing individual records (microdata) collected from survey respondents, doctor and hospital visits, and medical claims.
Minimizing Disclosure Risk in HHS Open Data Initiatives. References
Federal Trade Commission. “Data Brokers: A Call for Transparency and Accountability.” Washington, DC: Federal Trade Commission. Available at [ http://www.ftc.gov/system/files/documents/reports/data-brokers-call-tran... . May 2014.
Minimizing Disclosure Risk in HHS Open Data Initiatives. E. Datasets Released by HHS
HHS and the Institute of Medicine launched the Health Data Initiative (also known as the Open Data Initiative) in 2010. The purpose of the Health Data Initiative is to encourage “innovators to utilize health data to develop applications to raise awareness of health and health system performance and spark community action to improve health.” 1
Minimizing Disclosure Risk in HHS Open Data Initiatives. 4. Supplemental Guidance on the Implementation of M-13-13 “Open Data Policy – Managing Information as an Asset”
This document, which was issued in August 2013, provides additional, in-depth information to agencies on how to carry out the objectives of the Executive Order and OMB Memorandum M-13-13. Most importantly, this document provides a list of minimum goals that must be met by agencies to fulfill these policy requirements. Minimum requirements for an E
Minimizing Disclosure Risk in HHS Open Data Initiatives. 3. Open Data Policy—Managing Information as an Asset
Memorandum M-13-13, issued by OMB in conjunction with the Executive Order, and also directed to the heads of executive departments and agencies, establishes a framework to support effective information management strategies that will promote open data. An attachment to the memorandum includes four sections: a list of legal definitions relevant to
Minimizing Disclosure Risk in HHS Open Data Initiatives. 2. Making Open and Machine Readable the New Default for Government Information
Executive Order 13642, issued by President Obama on May 9, 2013, calls for a shift in the default policy in federal agencies toward that of free public access to information. The order describes government information as an asset, the dissemination of which is likely to create new jobs, provide inspiration for entrepreneurship, and stimulate the A
Minimizing Disclosure Risk in HHS Open Data Initiatives. D. Open Data Documents
Four documents issued by the Executive Office of the President over a six-month period in 2013 define the scope and provide guidance on implementation of the new open data policy. These four documents were:
Minimizing Disclosure Risk in HHS Open Data Initiatives. Appendix D: Background Paper: Review of Federal Policies and Procedures Regarding the Use and Protection of Personal Data 1
Federal policies covering the use and protection of personal data focus on data collected or obtained by the federal government, but legislation extends to data collected at lower levels of government and by non-governmental entities.
Minimizing Disclosure Risk in HHS Open Data Initiatives. Session 3: What Are the Re-identification Threats to Releasing Federal Data to the Public?
Steve Cohen, AHRQ (moderator) Daniel Barth-Jones, Columbia University Khaled El Emam, University of Ottawa and Privacy Analytics Denise Love, National Association of Health Data Organizations (NAHDO) Brad Malin, Vanderbilt University Latanya Sweeney, Federal Trade Commission and Harvard University
Cohen: We need to be forward looking—let’s t
Minimizing Disclosure Risk in HHS Open Data Initiatives. References
Alexander, J. Trent, Michael Davern, and Betsey Stevenson. “Inaccurate Age and Sex Data in the Census PUMS Files: Evidence and Implications.” Public Opinion Quarterly , vol. 74, no. 3 (Fall 2010): 551-569.
Benitez K. and B. Malin. “Evaluating Deidentification Risks with Respect to the HIPAA Privacy Rule.” Journal of the American Medica
