Managed Care and People With Disabilities Research Inventory. Managed Care and People With Disabilities Research Inventory : Table 9


: Table 9

ORGANIZATION:   UCP of Greater Birmingham
TELEPHONE:   (205) 251-0165
NAME OF STUDY:   Secondary and Associated Conditions of Children with Cerebral Palsy (CP) or Spina Bifida (SP)
FUNDING SOURCE:   CDC-Funded Alabama Disablities Prevention State Capacity Building Grant
PROJECT DATES:   October 1994 - September 1996
RESEARCH QUESTIONS/GOALS:   To identify secondary and associated conditions in children with CP or SB. In addition to secondary and associated conditions, analyses will focus on caregiver stress and socialization, social integration of the child, services and resources, health care utilization, and cost. Additional analyses will assess differences in the health care utilization between children in HMOs and children in non-HMO health plans.
BRIEF DESCRIPTION OF METHODS AND DATA:   Personal interviews were conducted with 126 parent/guardian caregivers. The personal interview instrument contained items on the child, the caregiver, the family unit, and resource utilization. Focus groups with caregivers were also conducted, addressing the effects of secondary conditions on children’s daily lives. Preliminary analysis of the above issues focused on three age cohorts: birth to 5 years, 6 to 10 years, and 11 to 15 years.
AVAILABILITY OF RESULTS:   A draft report will be sent to COC in the Spring of 1996.