Implementing the re-design of the CMS Blue Button to Increase Data Access and Empower Beneficiaries
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Improving existing data infrastructure to support more timely and complete mortality data collection.
Empowering patients by re-designing the Centers for Medicare & Medicaid Services Blue Button to enable it as a ‘Data-as-a-Service’ platform.
Strengthening and Expanding the Community Health Applied Research Network (CHARN) Registry to Conduct Patient-Centered Outcomes Research (PCOR)
Expanding CHARN data registries and making data available to PCOR investigators outside of the CHARN network.
Creating the Foundational Building Blocks for the Learning Health Care System: Data Access Standards for Electronic Health Records (EHRs)
Creating an Application Programming Interface (API) that extracts data from electronic health records in a standardized way.
Developing common data element standards for electronic health records.
Expanding Data Collection for the National Program of Cancer Registries (NPCR) for Comparative Effectiveness Research (CER)
Enhancing state cancer registries to collect specialized data and expanding electronic health record reporting to central cancer registries.
Evaluating the performance of Comparative Effectiveness Research Inventory against other databases.
Consolidating data and evaluating the utility of the Multi-Payer Claims Database.
Maintenance and Support of the Chronic Conditions Warehouse (CCW) for Comparative Effectiveness Research (CER)
Supporting expanded data infrastructure enhancements to the Chronic Conditions Data Warehouse to facilitate patient-centered outcomes research.
Development of Data Infrastructure for Use of Electronic Health Records (EHRs) in Comparative Effectiveness Research (CER)
Establishing an infrastructure for the use of electronic health records in clinical comparative effectiveness research.
Allowing Medicare beneficiaries to donate their medical claims data for scientific research studies.
Aligning existing registries of women’s health technologies through a Coordinated Registry Network and creating an infrastructure for evaluating medical devices in clinical areas unique to women.
Building data infrastructure for conducting patient centered outcomes research using observational data derived from the delivery of health care in routine clinical settings.
Enhancing Data Resources for Researching Patterns of Mortality in Patient Centered Outcomes Research
Linking the National Death Index to other sources to increase the availability of information on the cause of death.
Advancing the Collection and Use of Patient-Reported Outcomes (PROs) through Health Information Technology (IT)
Supporting knowledge sharing through standardizing the integration of Patient Reported Outcomes data in electronic health records and other health IT solutions.
Use of the ADAPTABLE Trial to Strengthen Methods to collect and Integrate Patient-reported Information with Other Data Sets and Assess Its Validity
Using the ADAPTABLE Trial to generating tools and data standards for PCOR researchers.
Creating and implementing a data capture and querying system to improve research on data quality, characteristics, data source, and institutional characteristics.
Developing and testing the capability to conduct timely and secure distributed regression analysis in distributed data networks.
PCOR: Privacy and Security Blueprint, Legal Analysis and Ethics Framework for Data Use, & Use of Technology for Privacy
Creating resources to improve the privacy of patients and their data.