Creating the infrastructure to allow disparate systems to interpret and exchange patient information.
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Enabling data partners to engage with and access multiple research networks.
Collection of Patient-Provided Information through a Mobile Device Application for Use in Comparative Effectiveness and Drug Safety Research
Creating infrastructure for collecting data from patients through a mobile device application and enhancing data linkages.
Building the foundation to develop data infrastructure needed for patients to share their data with others
Implementing the re-design of the CMS Blue Button to Increase Data Access and Empower Beneficiaries
Improving existing data infrastructure to support more timely and complete mortality data collection.
Empowering patients by re-designing the Centers for Medicare & Medicaid Services Blue Button to enable it as a ‘Data-as-a-Service’ platform.
Strengthening and Expanding the Community Health Applied Research Network (CHARN) Registry to Conduct Patient-Centered Outcomes Research (PCOR)
Expanding CHARN data registries and making data available to PCOR investigators outside of the CHARN network.
Creating the Foundational Building Blocks for the Learning Health Care System: Data Access Standards for Electronic Health Records (EHRs)
Creating an Application Programming Interface (API) that extracts data from electronic health records in a standardized way.
Developing common data element standards for electronic health records.
Expanding Data Collection for the National Program of Cancer Registries (NPCR) for Comparative Effectiveness Research (CER)
Enhancing state cancer registries to collect specialized data and expanding electronic health record reporting to central cancer registries.
Evaluating the performance of Comparative Effectiveness Research Inventory against other databases.
Consolidating data and evaluating the utility of the Multi-Payer Claims Database.
Maintenance and Support of the Chronic Conditions Warehouse (CCW) for Comparative Effectiveness Research (CER)
Supporting expanded data infrastructure enhancements to the Chronic Conditions Data Warehouse to facilitate patient-centered outcomes research.
Development of Data Infrastructure for Use of Electronic Health Records (EHRs) in Comparative Effectiveness Research (CER)
Establishing an infrastructure for the use of electronic health records in clinical comparative effectiveness research.
Allowing Medicare beneficiaries to donate their medical claims data for scientific research studies.
Aligning existing registries of women’s health technologies through a Coordinated Registry Network and creating an infrastructure for evaluating medical devices in clinical areas unique to women.
Building data infrastructure for conducting patient centered outcomes research using observational data derived from the delivery of health care in routine clinical settings.
Enhancing Data Resources for Researching Patterns of Mortality in Patient Centered Outcomes Research
Linking the National Death Index to other sources to increase the availability of information on the cause of death.
Advancing the Collection and Use of Patient-Reported Outcomes (PROs) through Health Information Technology (IT)
Supporting knowledge sharing through standardizing the integration of Patient Reported Outcomes data in electronic health records and other health IT solutions.