Allowing Medicare beneficiaries to donate their medical claims data for scientific research studies.
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Aligning existing registries of women’s health technologies through a Coordinated Registry Network and creating an infrastructure for evaluating medical devices in clinical areas unique to women.
Building data infrastructure for conducting patient centered outcomes research using observational data derived from the delivery of health care in routine clinical settings.
Enhancing Data Resources for Researching Patterns of Mortality in Patient Centered Outcomes Research
Linking the National Death Index to other sources to increase the availability of information on the cause of death.
Advancing the Collection and Use of Patient-Reported Outcomes (PROs) through Health Information Technology (IT)
Supporting knowledge sharing through standardizing the integration of Patient Reported Outcomes data in electronic health records and other health IT solutions.
A working example to showcase the Food and Drug Administration’s guidance on electronic source data in clinical investigations.
Use of the ADAPTABLE Trial to Strengthen Methods to collect and Integrate Patient-reported Information with Other Data Sets and Assess Its Validity
Using the ADAPTABLE Trial to generating tools and data standards for PCOR researchers.
Creating and implementing a data capture and querying system to improve research on data quality, characteristics, data source, and institutional characteristics.
Designing a web service for the public and researchers to be able to share interoperable technologies to address public health issues.
Convening working groups to determine common clinical outcome definitions and enhancing common definitions across data collection and reporting systems.
Developing and testing the capability to conduct timely and secure distributed regression analysis in distributed data networks.
PCOR: Privacy and Security Blueprint, Legal Analysis and Ethics Framework for Data Use, & Use of Technology for Privacy
Creating resources to improve the privacy of patients and their data.
Linking and aggregating patient data to improve patient safety and privacy.
Improving existing data infrastructure to support more timely and complete mortality data collection.
PCORTF Home PCORTF FAQs PCORTF Reports PCORTF Project Profiles What is the Office of the Secretary’s Patient-Centered Outcomes Research Trust Fund (OS-PCORTF)?
People and families are considered poor when they lack the economic resources necessary to experience a minimal living standard. Official U.S. Census Bureau statistics estimate that 40 million persons, 12.3 percent of the total population, were poor in the United States in 2017. The topic of poverty is widely considered a cause for national action
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How Human Services Programs Can Use Social Capital to Improve Participant Well-Being and Economic Mobility
Research shows that individuals with higher levels of social capital are happier and healthier, find better jobs, and live longer, and that communities with higher levels of social capital have higher educational achievement, faster economic growth, and less crime. A wide range of HHS programs aim to help individuals, families, and communities a
PCORTF Home PCORTF FAQs PCORTF Reports PCORTF Project Profiles Welcome