ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES
Monday, July 27, 2015
Alzheimer's Disease Caregiver Support Initiative (ADCSI)
David Hoffman, Director
Bureau of Community Integration and Alzheimers Disease
- New York is now home to over 380,000 persons with AD/D, which is projected to grow to 460,000 by 2025.
- NYS has 1 million unpaid caregivers for persons with Alzheimer’s disease and other dementias (AD/D) that provide 1.1 billion hours of unpaid care with an estimated value of $14 billion.
- Over 25% of AD/D caregivers provide “constant care” for 40 hours or more a week.
- Providing care to individuals with AD/D has resulted in an estimated $771 million in higher health care costs for NYS caregivers.
- Populations disproportionately impacted (women, minorities, people who live alone) are at greater risk for complications.
- Early planning offers respect to the patient’s wishes and comfort to caregivers.
- Caregiver support services alleviate caregiver burden, enhance the quality of life for the individual with AD/D and the caregiver, reduces institutional placement, and lowers healthcare costs.
- We have an opportunity for the first time to use evidence based strategies to support this vulnerable population on a large scale.
Alzheimer’s Disease Caregiver Support Initiative
- A five year initiative to provide a wide range of comprehensive and coordinated evidenced-based caregiver support and respite services within specified geographic regions.
- Statewide Caregiver Project
- Centers of Excellence for Alzheimers Disease
- Alzheimer’s Disease Community Assistance Program
- Caregiver Support for Underserved Populations
- Project Evaluation
Statewide Caregiver Project Goals
- Develop and sustain of evidenced-based support services.
- Reduce avoidable ED visits and hospitalizations.
- Improve coordination and access to new and existing support services.
- Expand and enhance access to respite services.
- Improve health and well-being of caregivers and individuals with AD/D.
- Limit all unnecessary transitions.
- Continue community residence and reduce institutionalization of individuals diagnosed with AD/D.
Who May Apply
- Statewide, regional, and community not-for-profit organizations
- Government agencies (i.e. AAAs)
- Established partnerships of two or more of the types of organizations listed above.
Statewide Caregiver Project Description
Applicants Will :
- Provide the following caregiver support services:
- Care Consultation
- Family Consultation
- Support Groups
- Education and Training Programs
- One or more additional allowable caregiver service(s)
- Be required to collaborate with community-based organizations
- Conduct a thorough evaluation of their project and program’s effectiveness.
Statewide Caregiver Project Disbursement of Funds
- A total of $15 million per year will be disbursed among either one statewide or ten regional entities across NYS (three awards in NYC)
- Each successful applicant will be awarded up to $1.5 million per region per year or $15 million per year for a statewide initiative
- Five year contract with NYSDOH
Statewide Caregiver Project Contract Dates
- Applications due: August 4, 2015
- Contract time period: October 1, 2015 - September 30, 2020
Centers of Excellence for Alzheimer’s Disease (CEAD)
- Since 1988, NYSDOH has funded nine Alzheimer’s Disease Assistance Centers (ADACs).
- They have been providing comprehensive and coordinated medical and support services to individuals with AD/D, their families, and caregivers.
- They will now be rebranded as Centers of Excellence for Alzheimer’s Disease (CEAD).
CEAD Project Goals
- Provide education and training to health care providers and students in health care professions promoting the benefits of early diagnosis and treatment of individuals with AD/D, utilization of available treatments, and enrollment in clinical trials.
- Diagnose AD/D and co-morbid conditions.
- Prescribe effective treatment of AD/D, including palliative care and appropriate non-pharmacological treatment of behavioral symptoms.
- Provide follow-up care on at least an annual basis.
- Utilize an interdisciplinary team approach for patient diagnosis and care; patient, family, and caregiver support; and community linkages.
- Offer care management services (including needs assessment, care planning, care coordination, counseling, consultation and referrals) through close working relationships with service providers within a designated geographic area to individuals with AD/D and their caregivers.
- Expand and enhance the health care system’s capability to diagnose and treat individuals with AD/D.
- Provide technical assistance to health care and other service providers in the designated service area.
- Promote benefits of participation in research (e.g., clinical trials, studies, and patient registries.)
CEAD Who May Apply
- NYS not-for-profit major teaching hospitals with a demonstrated capacity for the provision of in-service and pre-service training for primary care providers, specialty care providers, medical students, and other health professionals.
CEAD Project Description
- Disease diagnosis and assessment
- Patient management and care
- Medical Provider training
- Collaboration with community organizations
- Promotion of public awareness of Alzheimer’s disease
- Project evaluation
CEAD Disbursement of Funds
- A total amount of $4,700,000 per year will be available to support up to 10 regional CEADs (3 awards in NYC)
- Five year contract with NYSDOH
CEAD Contract Dates
- Applications due: August 18, 2015
- Contract time period: October 1, 2015-September 30, 2020
Alzheimers Disease Community Assistance Program
- Authorized by Public Health Law
- Statewide contract with Coalition of Alzheimers Association Chapters
- Seven Chapters cover services statewide
- Increased value from $1 million annually to $5 million
- Care Planning and Consultation
- Caregiver Training
- Support Groups
- 24-hour helpline
- Community Awareness
- Increase Training for Important Constituencies
Caregiver Support for Underserved Populations
- Competition for 15 awards for up to $100,000 ($1.5 million total)
- Focus on traditionally underserved communities
- Could be underserved based on geography, culture, language, etc.
- Competition planned for late Summer 2015
- Partnership with UAlbany School of Public Health
- Collaborative evaluation includes all contractors
- Measurement of common elements
- Medicaid impact periodically assessed
- Periodic reports to the field