Advisory Council July 2014 Meeting Presentation: Sharing Information



Monday, July 21, 2014


Alzheimer's and Related Dementia:Sharing Information with Family and Friends

Rachel Seeger, MPA, MA
Senior Advisor, Public Affairs and Outreach
U.S. Department of Health and Human Services
Office for Civil Rights

New Resource List

  • Pulls all resources into one easy to use document
  • For Consumers and caregivers
    • Video
    • Factsheet
    • 8 languages, focus-tested and in plain language
  • For Providers
    • Guidance
    • Frequently Asked Questions
  • Resource List is in public domain -- can be branded by associations and other organizations

Tools for Providers

Tools for Consumers

OCR's YouTube Videos

  • 1,930,592 TOTAL VIEWS AS OF JULY 15, 2014
  • Visit us
  • Videos include:
    • Your New Rights Under HIPAA -- 271,584 Views
    • Your Health Information, Your Rights -- 127,991 Views
    • The Right to Access Your Health Information -- 87,893 Views
    • EHRs: Privacy and Security --7,205 Views
    • Explaining the Notice of Privacy Practices -- 127,453 Views
    • The HIPAA Omnibus Rule -- 280,645 Views
    • Su Informacion de Salud, Sus Derechos -- 511,511 Views
    • Treatment, Payment and Health Care Operations -- 79,735 Views
    • Communicating with Friends and Family -- 99,495 Views
    • HIPAA Security Rule -- 297,081 Views

Communicating with Friends, Family and Others Involved in Your Care


OCR website


Return to

National Alzheimer's Project Act Home Page

Advisory Council on Alzheimer's Research, Care, and Services Page

Advisory Council on Alzheimer's Research, Care, and Services Meetings Page


"Mtg13-Slides8.pdf" (pdf, 413.78Kb)

Note: Documents in PDF format require the Adobe Acrobat Reader®. If you experience problems with PDF documents, please download the latest version of the Reader®