Advisory Council July 2014 Meeting Presentation: 2014 National Plan and Family Support

07/21/2014

ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES

Monday, July 21, 2014

 

The 2014 National Alzheimer's Plan and Supports for Families

Jane Tilly, DrPH

Family Supports

  • Speakers at the Advisory Council's quarterly meetings emphasize the needs that families have as they help their loved ones cope with dementia.
  • Family means anyone the person with dementia chooses to consider family.
  • We reviewed the 2014 Plan related to action steps designed to support families.
  • Concern and attention to unpaid caregivers infuses every area of the National Plan.
  • Concern and attention to unpaid caregivers cuts across all agencies and is part of all their collaborations.

Goal 1. Prevention and Treatment

  • ADEAR centers educate the public about management of dementia.
  • AHRQ is reviewing the effectiveness of behavioral management strategies.
  • Both action steps naturally involve family, as does the search for a cure or treatment to slow the disease.

Goal 2. Care Quality and Efficiency

  • HRSA and ACL are training workers and unpaid caregivers.
  • HHS is creating a clearing house for practice recommendations, which includes an emphasis on unpaid caregivers.
  • CDC's Healthy Brain Initiative has a focus on unpaid care partners.
  • ACL is using grants to promote dementia capable HCBS that incorporate services for unpaid caregivers.
  • ACL is making information about unpaid caregiver assessment and supports available to the Aging Network
  • IHS is providing information to Indian Country about unpaid caregiving.
  • HHS is working with the National Quality Forum on measures of quality services for unpaid caregivers.

Goal 3. Expand Supports

  • HHS is reviewing materials for unpaid caregivers related to cultural sensitivity.
  • HIT is being used to promote aging in place and address needs of unpaid caregivers.
  • ASPE is identifying unmet service needs (NHATS analysis).
  • ACL worked with private partners to produce a whitepaper on interventions for unpaid caregivers.
  • ACL is promoting dementia capable HCBS and specialized services.
  • National Alzheimer's Call Center.

Goal 4. Public Awareness

  • Alzheimer's awareness campaign.
  • Websites (alzheimers.gov, eldercare locator)
  • Webinars on unpaid caregiver issues.

Goal 5. Improve Data

  • Dementia Chartbook, which will include data on unpaid caregivers.

Questions for Council Consideration

  • Does the 2014 National Plan take sufficient account of the needs of families of people with dementia?
  • Should the 2015 National Plan address the needs of families differently?
  • How can the 2015 Plan address the changing roles of unpaid caregivers?
    • Clinical role and providing more medical care at home
    • Participation in care planning and implementation
  • How could the 2015 Plan involve more directly governmental and private organizations at the national, state, and local levels?
  • How should we measure success?

Return to

National Alzheimer's Project Act Home Page

Advisory Council on Alzheimer's Research, Care, and Services Page

Advisory Council on Alzheimer's Research, Care, and Services Meetings Page

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