ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES
Monday, July 21, 2014
The 2014 National Alzheimer's Plan and Supports for Families
Jane Tilly, DrPH
- Speakers at the Advisory Council's quarterly meetings emphasize the needs that families have as they help their loved ones cope with dementia.
- Family means anyone the person with dementia chooses to consider family.
- We reviewed the 2014 Plan related to action steps designed to support families.
- Concern and attention to unpaid caregivers infuses every area of the National Plan.
- Concern and attention to unpaid caregivers cuts across all agencies and is part of all their collaborations.
Goal 1. Prevention and Treatment
- ADEAR centers educate the public about management of dementia.
- AHRQ is reviewing the effectiveness of behavioral management strategies.
- Both action steps naturally involve family, as does the search for a cure or treatment to slow the disease.
Goal 2. Care Quality and Efficiency
- HRSA and ACL are training workers and unpaid caregivers.
- HHS is creating a clearing house for practice recommendations, which includes an emphasis on unpaid caregivers.
- CDC's Healthy Brain Initiative has a focus on unpaid care partners.
- ACL is using grants to promote dementia capable HCBS that incorporate services for unpaid caregivers.
- ACL is making information about unpaid caregiver assessment and supports available to the Aging Network
- IHS is providing information to Indian Country about unpaid caregiving.
- HHS is working with the National Quality Forum on measures of quality services for unpaid caregivers.
Goal 3. Expand Supports
- HHS is reviewing materials for unpaid caregivers related to cultural sensitivity.
- HIT is being used to promote aging in place and address needs of unpaid caregivers.
- ASPE is identifying unmet service needs (NHATS analysis).
- ACL worked with private partners to produce a whitepaper on interventions for unpaid caregivers.
- ACL is promoting dementia capable HCBS and specialized services.
- National Alzheimer's Call Center.
Goal 4. Public Awareness
- Alzheimer's awareness campaign.
- Websites (alzheimers.gov, eldercare locator)
- Webinars on unpaid caregiver issues.
Goal 5. Improve Data
- Dementia Chartbook, which will include data on unpaid caregivers.
Questions for Council Consideration
- Does the 2014 National Plan take sufficient account of the needs of families of people with dementia?
- Should the 2015 National Plan address the needs of families differently?
- How can the 2015 Plan address the changing roles of unpaid caregivers?
- Clinical role and providing more medical care at home
- Participation in care planning and implementation
- How could the 2015 Plan involve more directly governmental and private organizations at the national, state, and local levels?
- How should we measure success?