Advisory Council April 2014 Meeting Presentation: Minnesota State Plan

04/29/2014

ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES

Tuesday, April 29, 2014

 

ACT on Alzheimer's Presentation

www.ACTonALZ.org

What is ACT on Alzheimer's?

  • Statewide
    • 60+ organization
  • Volunteer driven
    • 300+ individuals
  • Collaborative
  • Impacts of Alzheimer's
    • Budgetary
    • Social
    • Person

Genesis of ACT on Alzheimer's

  • 2009 Legislative Mandate for Alzheimer's Disease Working Group (ADWG)
  • Legislative Report Filed in January 2011
  • ACT on Alzheimer's is second generation of work focusing on implementation

Collaborative Structure

  • 45+ Leadership Council
    • Advisors
    • Strategists
    • Champions
  • 10+ Management Steering committee
    • Organizations actively involved in day-to-day operations
  • 300+ Operations
    • Executive Lead
    • Project Director
    • Project Manager
    • Five Leadership Groups
    • Fiscal Sponsor
    • Community ACTion Teams

Goals/Common Agenda of ACT

  • Identify & Invest in Promising Approaches
  • Raise Awareness & Reduce Stigma
  • Equip Communities
  • Sustain Caregivers
  • Increase Detection & Improve Care

Identify and Invest in Promising Approaches

  • Economic model to identify promising approaches that control costs associated with Alzheimer's
  • Initially use model to estimate savings and return on investment for in-person caregiver support
  • Results reflected in Health Affairs and subsequent Net Savings analysis

** Funders: UCare; BCBS; Care Providers of MN Foundation

Increase Detection and Improve Care

  • Develop and disseminate Practice Tools that support providers in assessing, diagnosing, treating and managing dementia
  • Develop dementia curriculum for health professionals and standards for health care homes

** U of MN Center on Aging (HRSA funds)

Audiences for Provider Tools

  • Primary Care Providers/Health Care Homes
  • Care Coordinators
  • Community Based Organizations
  • Persons with Early Stage AD; Care Partners
  • Direct Care Service Staff Trainers
  • Mid-Late Stage Providers
  • Professional School Faculty
  • Electronic Record Providers

Sustain Caregivers

  • Enhancements to MinnesotaHelp.info
  • Dementia capable Senior LinkAge Line staff and Caregiver Coaches
  • After a Diagnosis, caregiver tool

**Leveraged DHS SystemsIntegration Grant

Equip Communities and Raise Awareness

  • Develop a Community Toolkit to foster dementia friendly communities
  • Support community implementation of the toolkit

*Funders: Blue Plus, MN; Medica Foundation; Greater Twin Cities United Way

Dementia-Friendly Community

  • Early diagnosis and quality care and support
  • Dementia-aware and responsive customer service
  • Suitable transportation and public spaces
  • Emergency preparedness and response
  • Independent living and quality of life support
  • Welcoming and supportive spiritual environment
  • Dementia-aware and responsive client services
  • Specialized memory loss services

Foundation for Dementia Community Toolkit

  • Informed by research regarding stages of community readiness and engagement
    • Initiate mobilization
    • Establish organizational structure
    • Build capacity for action
    • Plan for action
    • Implement
    • Refine
    • Institutionalize

Four-Phase Community Toolkit

  • Convene: Action Phase 1
    • Convene key community leaders and members to form an Action Team.
  • Assess: Action Phase 2
    • Assess current strengths and gaps within the community.
  • Analyze: Action Phase 3
    • Review findings to understand your community's needs anddevelop a plan to take action.
  • ACT Together: Action Phase 4
    • ACT Together to pursue priority goals to foster community readiness for dementia.

Action Team Composition

  • Action Team
    • People with Dementia
    • Family Caregivers
    • Actions
      • Residential Settings
      • Wellness
      • Faith Community
      • Diverse & Underserved Populations
      • Service Clubs
      • Financial & Legal Planning
      • Business
      • Non-Profit Organizations
      • Educational Institutions
      • Senior Service Providers
      • Government Agencies
      • Health Care Community
      • Community Members

Assess--Capacity for Action

  • Approach
    • Informal method to gauge community readiness, raise awareness, create linkages and spark momentum for change
    • A conversation, not a study
  • Multi-Sector Scope
    • Action Team
    • Adult Day
    • Caregiver Supports
    • Employers
    • Health Care Providers
    • Clinics
    • Transportation
    • Home Health Providers
    • Hospitals
    • Legal and Financial Planners
    • Local Government
    • Residential Settings
    • Social Service Agencies
    • Community Members (e.g., faith, business)

Analyze--Planning for Action

Look for High Priority, Low Activity Areas of Need

Phase-Specific Technical Assistance

PHASE ACT on Alzheimer's Technical Assistance
Convene
  • Broad coalition building
  • Communications templates and support
  • Local coordinator support and structure development  
Assess
  • Multi-sector survey tool for dementia capability
  • Participant orientation, engagement and facilitation
Analyze
  • Synthesis tool and community needs identification
  • Goal prioritization
ACT Together  
  • Collection of best practice intervention strategies
  • Seed funding to implement priority goals
  • Implementation planning and support
  • Progress tracking

Action Communities

  • Bemidji
  • Brainerd/Baxter
  • Cambridge
  • CLUES (St. Paul/WSP)
  • Detroit Lakes
  • Edina
  • Forest Lake
  • Harmony
  • International Falls
  • MN Council of Churches
  • Marshall
  • Northfield
  • Roseville
  • St. Louis Park
  • St. Paul Neighborhoods
  • St. Paul NE Neighborhoods
  • Twin Cities Jewish Community
  • Walker
  • Willmar

We ACT so You Can ACT!

Join Us!


Return to

National Alzheimer's Project Act Home Page

Advisory Council on Alzheimer's Research, Care, and Services Page

Advisory Council on Alzheimer's Research, Care, and Services Meetings Page

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