| Year
|
Title
|
Author
|
Summary
|
Details
|
| 2003 May
|
Public health infrastructure system change: outcomes from the turning point initiative
|
Berkowitz B;Nicola RM;
|
The Turning Point initiative was created to transform and strengthen the public health infrastructure. This study examined public health system changes for their links to multiple sector collaborative engagement, essential public health services, health outcomes, and infrastructure building strategies.
|
Details | |
| 2003 Mar 12
|
Central challenges facing the national clinical research enterprise
|
Sung NS;Crowley WF;Genel M;Salber P;Sandy L;Sherwood LM;Johnson SB;
|
The goal of this article is to articulate the 4 central challenges facing clinical research at present--public participation, information systems, workforce training, and funding; to make recommendations about how they might be addressed by particular stakeholders; and to invite a broader, participatory dialogue with a view to improving the overall performance of the US clinical research enterprise
|
Details | |
| 2003 Mar
|
Building the infrastructure for public health
|
Morey S;Madden L;
|
Australia: SuccessÂ’ in public health is facilitated by the ability to attract and retain a well-trained and enthusiastic workforce and a suitable, stable infrastructure. This article briefly describes steps taken at the end of the 1980s both to determine the need for and to create a public health infrastructure and workforce.
|
Details | |
| 2003 Mar
|
Electronic healthcare record; a way to empower the patient
|
Beun JG;
|
Patients and their organizations have to play an active role in designing and implementation of an ICT infrastructure for health care and in particular of the EPR
|
Details | |
| 2003 Mar
|
Improving the US health care system: action plan to enhance efficiency, reduce errors, and improve quality
|
Tilson H;Helms D;Dowdy D;
|
The decisions made by stakeholders in the nation's health care system that affect the quality of care experienced by patients are too often made without the benefit of scientific evidence. A multidisciplinary set of investigators conducting health services research have traditionally filled this gap between research findings and clinical decision making, but several barriers are hindering this work. This article offers several recommendations-restructuring organizations, ensuring funding, developing infrastructure, strengthening the community of researchers, and forging new links among stakeholders-to promote high-quality information for health decision makers
|
Details | |
| 2003 Jun 4
|
Design of a National Retail Data Monitor for Public Health Surveillance
|
Wagner MM;Robinson JM;Tsui FC;Espino JU;Hogan WR;
|
The National Retail Data Monitor receives data daily from 10,000 stores that sell healthcare products, including pharmacies. These stores belong to national chains that process sales data centrally, and utilize Universal Product Codes and scanners to collect sales information at the cash register. The high degree of retail sales data automation enabled the monitor to collect information from thousands of store locations in near to real time for use in public health surveillance.. Future plans include continued enrollment and support of health departments, developing methods to make the service financially self-supporting, and further refinement of the data collection system to reduce the time latency of data receipt and analysis
|
Details | |
| 2003 Jun
|
Gaps between the rich and the poor. The widening differences in wealth, life expectancy, public health infrastructure and perception of threats, and the consequences for global security
|
Garrett L;
|
|
Details | |
| 2003 Jun
|
Syndromic surveillance using minimum transfer of identifiable data: the example of the national bioterrorism syndromic surveillance demonstration program
|
Platt R;Bocchino C;Caldwell B;Harmon R;Kleinman K;Lazarus R;Nelson AF;Nordin JD;Ritzwoller DP;
|
Several health plans and other organizations are collaborating with the Centers for Disease Control and Prevention to develop a syndromic surveillance system with national coverage that includes more than 20 million people. A principal design feature of this system is reliance on daily reporting of counts of individuals with syndromes of interest in specified geographic regions rather than reporting of individual encounter-level information.
|
Details | |
| 2003 Jun
|
The Pediatric Emergency Care Applied Research Network (PECARN): Rationale, development, and first steps
|
|
The Pediatric Emergency Care Applied Research Network (PECARN) is the first federally funded national network for research in emergency medical services for children (EMSC) and is the result of cooperative agreement grants funded through the Health Resources and Services Administration with the purpose of developing an infrastructure capable of overcoming inherent barriers to EMSC research.
|
Details | |
| 2003 Jul
|
Is what's mine my own?
|
Cayton H;Denegri S;
|
This paper examines the key issues around privacy and the secondary use of data in health research from the perspective of patients and the public. There is a need to involve patients and their representatives in the development of any new system
|
Details | |
| 2003 Jul
|
Learning from experience: privacy and the secondary use of data in health research
|
Lowrance W;
|
Health services research must continually address issues such as under what conditions data may be not collected specifically for research, such as primary medical data, be re-used for research without compromising the privacy of the data-subjects, etc.
Public health mandates and protections deserve to be clarified, strengthened and extended for a variety of surveillance, registration, clinical audit, health services research and other types of investigation.
|
Details | |
| 2003 Jul
|
Public views on healthcare performance indicators and patient choice
|
Magee H;Davis LJ;Coulter A;
|
Patients on certain waiting lists in the UK National Health Service (NHS) are now offered the choice of persevering with their home hospital or switching to another hospital where they will be treated on a guaranteed date. Such decisions require knowledge of performance. Many participants felt the NHS did not offer much scope for choice of provider. If public access to performance information is to succeed in informing referral decisions and raising quality standards, the public and general practitioners will need education on how to interpret and use the data
|
Details | |
| 2003 Jul
|
Secondary use of personal data for health and health services research: why identifiable data are essential
|
Black N;
|
Linking databases with identifiable data provides a powerful and essential resource for health and health services research.
Given the benefits to the public of such research activities, methods need to be found to ensure the continuation of such research while meeting legitimate concerns about individual privacy and confidentiality
|
Details | |
| 2003 Jul
|
The Patient Information Advisory Group and the use of patient-identifiable data
|
Higgins J;
|
Patient confidentiality has been a matter of concern in the English National Health Service (NHS) for many years. A number of recent events have triggered the demand for a more concerted programme of change to eliminate the use of patient-identifiable data and to devise more acceptable alternatives.
|
Details | |
| 2003 Jan 6
|
Building the national health information infrastructure for personal health, health care services, public health, and research
|
Detmer DE;
|
A national health information infrastructure is a necessary step for improved health in the U.S. It will require a concerted, collaborative effort by both public and private sectors. If you cannot measure it, you cannot improve it. Lord Kelvin
|
Details | |
| 2003 Jan
|
Information system concepts for quality measurement
|
James B;
|
A shared national measurement framework is essential because the data systems that health care delivery organizations use are not static. A long-term vision can guide the growth of a data system over time. A national quality measurement and reporting system (NQMRS) can be the vehicle that provides the needed vision.
|
Details | |
| 2003 Jan
|
The National Emergency Medical Extranet project
|
Barthell EN;Pemble KR;
|
The National Emergency Medical Extranet (NEME) project was a collaborative multi-center effort to create a plan for a networked system to improve emergency clinical care through real-time information support, and simultaneously provide benefit through information support for public health initiatives. This article presents a review of the National Emergency Medical Extranet (NEME) project and its recommendations, which are particularly relevant given the desire for improved communication and surveillance systems in today's healthcare and public health environments.
|
Details | |
| 2003 Jan
|
Tribal connections health information outreach: results, evaluation, and challenges
|
Wood FB;Sahali R;Press N;Burroughs C;Mala TA;Siegel ER;Rambo N;Fuller SS;
|
The National Library of Medicine (NLM) initiated a program of intensified outreach to Native Americans, initially focusing on the Pacific Northwest in collaboration with the Pacific Northwest Regional Medical Library (PNRML). This initiative, known as the Tribal Connections Project, emphasized the establishment or strengthening of Internet connections at select Indian reservations and Alaska Native villages and related needs assessment and training. The knowledge gained from Tribal Connections Project Phase I is helping refine and enhance subsequent NLM-sponsored tribal connections and similar community outreach efforts
|
Details | |
| 2003 Feb
|
IT takes a village to tackle health care's biggest challenges
|
Simpson RL;
|
Examine how initiatives from a host of health care constituencies use information technology to address two of health care's most daunting challenges--the nursing shortage and patient safety
|
Details | |
| 2003 Apr
|
Outcomes management. A role for everyone
|
Urden LD;
|
In summary, many persons have an impact on the outcomes of care and services, although some are more directly involved in day-to-day clinical care; whereas others are in support roles more removed from the clinical area. To manage outcomes effectively and ensure quality care, key stakeholders must be active participants, and an infrastructure must be in place to support the entire effort
|
Details | |
| 2003 Apr
|
Public, personal, and institutional health: a delicate balance
|
Porter-O'Grady T;
|
No abstract available
|
Details | |
| 2003
|
A call to arms: why the NHII is critical to our nation's security
|
Roberts D;
|
|
Details | |
| 2003
|
Public health, GIS, and the internet
|
Croner CM;
|
Internet access and use of georeferenced public health information for GIS application will be an important and exciting development for the nation's Department of Health and Human Services and other health agencies in this new millennium.
|
Details | |
| 2002 Sep 17
|
The promise of e-Health - a Canadian perspective
|
Alvarez RC;
|
Canada's system of health care faces significant financial and population pressures, relating to cost, access, quality, accountability, and the integration of information and communication technologies (ICTs). The Canadian Institute for Health Information (CIHI) will play an increasingly significant role in the management of health information.
|
Details | |
| 2002 Sep
|
Through a glass darkly: what should public health observatories be observing?
|
Watkins F;Bendel N;Scott-Samuel A;Whitehead M;
|
United Kingdom: Information requires skilled interpretation to become policy-relevant public health intelligence. This research identified major problems in the communication of lay health knowledge and in the accessibility of public health intelligence.
|
Details | |
| 2002 Oct 23
|
The quality case for information technology in healthcare
|
Bates DW;
|
This report suggests that there are five key policy domains that need to be addressed: standards, incentives, security and confidentiality, professional involvement, and research, with financial incentives representing the single most important lever
|
Details | |
| 2002 Nov
|
Public health and national security: the critical role of increased federal support
|
Frist B;
|
Protecting the public's health historically has been a state and local responsibility. However, the growing threat of bioterrorism has highlighted the importance of a strong public health infrastructure to the nation's homeland security and has focused increased attention on the preparedness of the public health system.
|
Details | |
| 2002 Nov
|
Strengthening the nation's public health infrastructure: historic challenge, unprecedented opportunity
|
Baker EL;Koplan JP;
|
The nation's attention has been focused on the vital need for a strong public health infrastructure to protect community health. This paper provides an overview of progress during the past decade and points to immediate challenges and opportunities that resulted from recent events.
|
Details | |
| 2002 Nov
|
Transforming the public health information infrastructure
|
Lumpkin JR;Richards MS;
|
The public health information infrastructure is undergoing a transformation that is enabled by changes in health care informatics. The implementation of the Health Insurance Portability and Accountability Act (HIPAA) of 1996, the patient medical record information standards, and National Health Information Infrastructure (NHII) recommendations by the National Committee on Vital and Health Statistics provide the basis for improved data reporting to public health agencies.
|
Details | |
| 2002 May
|
Addressing racial and ethnic barriers to effective health care: the need for better data
|
Bierman AS;Lurie N;Collins KS;Eisenberg JM;
|
National efforts to eliminate racial and ethnic disparities in health outcomes and quality of care are hindered by the lack of race/ethnicity data. Collection of these data by health care providers, coupled with standards for collection, use, and privacy protection, would be a first step toward eliminating disparities.
|
Details | |
| 2002 May
|
Improving childhood asthma outcomes in the United States: a blueprint for policy action
|
Lara M;Rosenbaum S;Rachelefsky G;Nicholas W;Morton SC;Emont S;Branch M;
|
The objective of this project was to create a blueprint for improvement of national policy in the area of childhood asthma management. Recommendations include developing a national asthma surveillance system and establishing a national agenda for asthma prevention research, with an emphasis on epidemiologic and behavioral sciences. Implementing these recommendations will require coordination of activities at the national, state, and local community level, and within and outside the health care delivery system.
|
Details | |
| 2002 Mar
|
AMIA advocates national health information system in fight against national health threats
|
Tang PC;
|
To protect public health and national safety, AMIA recommends that the federal government dedicate technologic resources and medical informatics expertise to create a national health information infrastructure (NHII). An NHII provides the underlying information utility that connects local health providers and health officials through high-speed networks to national data systems necessary to detect and track global threats to public health.
|
Details | |
| 2002 Jun 15
|
Data Grids: a new computational infrastructure for data-intensive science
|
Avery P;
|
The experience gained with new information systems, providing transparent managed access to massive distributed data collections, will be applicable to large-scale, data-intensive problems in a wide spectrum of scientific and engineering disciplines, and eventually in industry and commerce. Such systems will be needed in the coming decades as a central element of our information-based society.
|
Details | |
| 2002 Jun 12
|
Will the nation be ready for the next bioterrorism attack? Mending gaps in the public health infrastructure
|
Salinsky E;
|
This paper provides an overview of critical weaknesses in existing public health preparedness capabilities and discusses current policy initiatives to address these shortcomings. It examines developmental needs related to communication and coordination, information systems, laboratories, the development and distribution of vaccines and other countermeasures, emergency medical preparedness and response, and the public health workforce. The paper summarizes the current status of federal and state plans to respond to these developmental needs and touches on the future challenges likely to emerge as these plans are implemented
|
Details | |
| 2002 Jun
|
General practice and computing standards
|
Liaw ST;
|
The current Health Online framework and National Health Information Standards Plan, with nationally coordinated implementation strategies like HealthConnect and the Better Medication Management System, are encouraging, However, there is little common understanding of technical and semantic standards among clinicians, administrators and researchers in general practice and health care system.
|
Details | |
| 2002 Dec
|
Implementation and integration of regional health care data networks in the Hellenic National Health Service
|
Lampsas P;Vidalis I;Papanikolaou C;Vagelatos A;
|
Greece: The regional health care data network is considered to be a critical infrastructure for further development and penetration of information and communication technologies in the Hellenic National Health System. Therefore, a technical approach was planned, in order to have a fast cost-effective implementation, conforming to certain specifications
|
Details | |
| 2002
|
Advanced technology program: information infrastructure for healthcare focused program
|
Spivack RN;
|
This paper describes an initiative begun by the Advanced Technology Program in 1994 referred to as the Information Infrastructure for Healthcare (IIH) focused program. The IIH focus program began with an initial exchange of ideas among members of the private and public sectors (industry's submission of 'white papers'; workshops conducted by the ATP; meetings held between individuals from both groups) to identify those technologies necessary for the development of a national information infrastructure in healthcare. A discussion of the development of the focus program through a 'white paper' process notes differences that existed between what the ATP had hoped to gain through this method and how the private sector responded. A statistical description of the participants as well as a brief discussion of the ATP review and selection process is included
|
Details | |
| 2002
|
Developing the health information infrastructure in the United States
|
Deering MJ;
|
Consumers, patients, and their families; health care providers and managers; public health professionals and policy makers need integrated multi-function health information structures that allow them to locate and apply information when and where they need it to make better decisions about health. The National Committee on Vital and Health Statistics (NCVHS), which advises the Secretary of Health and Human Services (HHS) on health information policy, is promoting a comprehensive vision of the National Health Information Infrastructure (NHII).
|
Details | |
| 2002
|
Information(al) matters: bioethics and the boundaries of the public and the private
|
Parker LS;
|
|
Details | |
| 2002
|
Rural public health: policy and research opportunities
|
Berkowitz B;Ivory J;Morris T;
|
This article provides an overview of public health policy and research implications, and it suggests that several issues contribute to the capacity of public health to effectively improve the outcomes of health in rural communities. These include the capacity of rural public health to manage population health, utilize information technology, monitor performance of the essential public health functions, develop leadership and the public health workforce, and promote the interaction and integration of public health and health care.
|
Details | |
| 2001 Nov
|
A national agenda for public health informatics
|
Yasnoff WA;Overhage JM;Humphreys BL;LaVenture M;Goodman KW;
|
The American Medical Informatics Association 2001 Spring Congress brought together the public health and informatics communities to develop a national agenda for public health informatics. Discussions on funding and governance; architecture and infrastructure; standards and vocabulary; research, evaluation, and best practices; privacy, confidentiality, and security; and training and workforce resulted in 74 recommendations with two key themes: (1) all stakeholders need to be engaged in coordinated activities related to public health information architecture, standards, confidentiality, best practices, and research and (2) informatics training is needed throughout the public health workforce. Implementation of this consensus agenda will help promote progress in the application of information technology to improve public health
|
Details | |
| 2001 Nov
|
A national agenda for public health informatics: summarized recommendations from the 2001 AMIA Spring Congress
|
Yasnoff WA;Overhage JM;Humphreys BL;LaVenture M;
|
The AMIA 2001 Spring Congress brought together members of the the public health and informatics communities to develop a national agenda for public health informatics. Discussions of funding and governance; architecture and infrastructure; standards and vocabulary; research, evaluation, and best practices; privacy, confidentiality, and security; and training and workforce resulted in 74 recommendations with two key themes-that all stakeholders need to be engaged in coordinated activities related to public health information architecture, standards, confidentiality, best practices, and research; and that informatics training is needed throughout the public health workforce. Implementation of this consensus agenda will help promote progress in the application of information technology to improve public health
|
Details | |
| 2001 Mar
|
Digital signature technology for health care applications
|
Wang HA;Wang YZ;Wang S;
|
The personal computer and the Internet have provided many useful services to both health care professionals and the general public. However, security remains a key factor that could limit their further growth potential. A hybrid approach that involves the government's development of a dedicated security infrastructure for health care providers and the use of commercial off-the-shelf products and services by the general public offers the most cost-effective and viable approach.
|
Details | |
| 2001 Mar
|
Telehealth and the global health network in the 21st century. From homecare to public health informatics
|
Kun LG;
|
The Information Era we live in has created new challenges and opportunities. This age of information highways has an economic price, which has not been properly evaluated. Detailed studies are needed to prove the cost and medical effectiveness of these technologies as well as its effects in the quality of life.
|
Details | |
| 2001 Jun
|
National health information privacy: regulations under the Health Insurance Portability and Accountability Act
|
Gostin LO;
|
Health information privacy is important in US society, but existing federal and state law does not offer adequate protection. The Department of Health and Human Services, under powers granted by the Health Insurance Portability and Accountability Act of 1996, recently issued a final rule providing systematic, nationwide health information privacy protection. The rule is extensive in its scope, applying to health plans, health care clearinghouses, and health care providers (hospitals, clinics, and health departments) who conduct financial transactions electronically ('covered entities'). The rule applies to personally identifiable information in any form, whether communicated electronically, on paper, or orally. The rule does not preempt state law that affords more stringent privacy protection.
|
Details | |
| 2001 Feb
|
Federal efforts to improve quality of care: the Quality Interagency Coordination Task Force (QuIC)
|
Eisenberg JM;Foster NE;Meyer G;Holland H;
|
The Quality Interagency Coordination Task Force (QuIC) has coordinated efforts in credentialing, information on measures of quality, a taxonomy of quality improvement methods, and errors data collection. The QuIC agencies are developing products that will enhance their ability to communicate with the American people about their health care choices: improved gateways for consumer information available from federal agencies, a glossary of commonly used terms, and guidance for producing report cards on quality of care.
|
Details | |
| 2001 Feb
|
Shared expectations for protection of identifiable health care information: report of a national consensus process
|
Wynia MK;Coughlin SS;Alpert S;Cummins DS;Emanuel LL;
|
The Ethical Force Program is a collaborative effort to create performance measures for ethics in health care. This report lays out areas of consensus that may be amenable to performance measurement on protecting the privacy, confidentiality and security of identifiable health information.
|
Details | |
| 2001
|
Health information: reconciling personal privacy with the public good of human health
|
Gostin LO;
|
A national policy on health informational privacy should be guided by ethical principles that respect individual autonomy while recognizing the important collective interests in the use of health information. At present there are no adequate laws or constitutional principles to help guide a rational privacy policy.
|
Details | |
| 2001
|
The health care information directive
|
Upshur RE;Goel V;
|
The health care information directive may increase individuals understanding of the uses of health information and increase their willingness to contribute certain kinds of health information. Further refinement and evaluation of the directive is required
|
Details | |
| 2000 Oct
|
Medical information privacy and the conduct of biomedical research
|
Korn D;
|
Profound changes in the health care delivery system, the increasing pervasiveness of information technology, and dramatic advancements in research in human genetics are intensifying public concerns about the privacy of medical information. The author argues that some of these concerns, such as the fear that medical data could be used to deny health insurance or employment, are 'pragmatic' and can be dealt with through the political process. But other, 'ideologic' concerns tend to generate strong emotions and political positions that impede rational discourse and confound attempts to seek workable compromises.
|
Details | |
| 2000 Nov
|
Advanced Technology Program's information infrastructure for healthcare focused program: a brief history
|
Lide B;Spivack RN;
|
This review examines how a 'bottom-up' model of a civilian technology program works by recounting the story of the 'genesis' of the Information Infrastructure for Healthcare (IIH) focused program of the Advanced Technology Program.
|
Details | |
| 2000 Nov
|
Local implementation of clinical practice guidelines and continuous quality improvement: challenges and opportunities
|
Diamond LH;
|
Implementing clinical practice guidelines (CPGs), disease management programs, and quality improvement projects requires an understanding of the trends that will facilitate adoption at the local level. These trends include consumerism and the building of a national information technology infrastructure. The recommendations of the Presidential Advisory Commission on Consumer Protection and Quality in the Health Care Industry and the Institute of Medicine (IOM) report entitled 'To Err Is Human: Building a Safer Health System' will frame developments and implementation.
|
Details | |
| 2000 Nov
|
Security of the distributed electronic patient record: a case-based approach to identifying policy issues
|
Anderson JG;
|
The collection, storage and communication of a large variety of personal patient data present a major dilemma for privacy and confidentiality. The main threats to privacy and confidentiality arise from within the institutions that provide patient care as well as institutions that have access to patient data for secondary purposes.
|
Details | |
| 2000 Dec 28
|
Standards for privacy of individually identifiable health information. Office of the Assistant Secretary for Planning and Evaluation, DHHS. Final rule
|
|
This rule proposes standards to protect the privacy of individually identifiable health information maintained or transmitted in connection with certain administrative and financial transactions. The use of these standards would improve the efficiency and effectiveness of public and private health programs and health care services by providing enhanced protections for individually identifiable health information.
|
Details | |
| 2000
|
Canadian experiences in telehealth: equalizing access to quality care
|
Jennett PA;Person VL;Watson M;Watanabe M;
|
To encourage Canadian telehealth initiatives, the federal government is building a national health infrastructure. One element in this framework is concerned with empowering the public, strengthening health care services, and ensuring accountability. Technological advancements and innovative partnerships among health communities, government, users, professional bodies, and industry are critical to continued growth.
|
Details | |
| 2000
|
Health technology assessment in Greece
|
Liaropoulos L;Kaitelidou D;
|
Health reform in Greece aimed to assure universal coverage and equity in the distribution of services. The system has been plagued by problems, including geographical inequalities, overcentralization, bureaucratic management, poor incentives in the public sector, open-ended financing, inefficient use of hospital beds, and lack of cost-effectiveness. New legislation may introduce evaluation and assessment elements into health policy formulation and assure that cost effectiveness, quality, and appropriate use of health technology.
|
Details | |
| 2000
|
Medical errors: how the US Government is addressing the problem
|
Schulman KA;Kim JJ;
|
The Institute of Medicine (IOM) report on medical errors has sparked debate among US health policy makers as to the appropriate response to the problem. Proposals range from the implementation of nationwide mandatory reporting with public release of performance data to voluntary reporting and quality-assurance efforts that protect the confidentiality of error-related data.
|
Details | |
| 1999 Sep 22
|
Enhancing performance measurement: NCQA's road map for a health information framework. National Committee for Quality Assurance
|
Schneider EC;Riehl V;Courte-Wienecke S;Eddy DM;Sennett C;
|
In 1996, the National Committee for Quality Assurance (NCQA) commissioned a report to learn what actions would improve health plans' capacity to electronically report performance data for the Health Plan Employer Data and Information Set (HEDIS). Tracking clinical performance will require not just clinical data stored in information systems, but an integrated health information framework.
|
Details | |
| 1999 Oct
|
The forum of ESRD networks: past, present and future
|
Wish JB;
|
The increasing visibility and credibility of the Forum of ESRD Networks in the national ESRD landscape is due, in large part, to the Forum's longstanding and unwavering advocacy for improved ESRD patient outcomes through the application of continuous quality improvement methodologies and the development of a data infrastructure which encompasses a universal patient sample. This advocacy is untainted by the agenda of any single professional constituency, and its success is limited only by the commitment that all stakeholders (payers, providers, and patients) have to the process. The data infrastructure, SIMS-VISION, is almost a reality, and has the potential to significantly improve the quality of care through the provision of provider-specific profiles to drive quality improvement.
|
Details | |
| 1999 Nov 3
|
Standards for privacy of individually identifiable health information. Office of the Assistant Secretary for Planning and Evaluation, DHHS. Proposed rule
|
|
This rule proposes standards to protect the privacy of individually identifiable health information maintained or transmitted in connection with certain administrative and financial transactions. The use of these standards would improve the efficiency and effectiveness of public and private health programs and health care services by providing enhanced protections for individually identifiable health information.
|
Details | |
| 1999 Mar
|
Information for Health
|
Gann B;
|
|
Details | |
| 1999 Mar
|
Progressing the health information management and information technology agenda
|
|
Australia:
Developments and policy direction at a national level may seem far removed from the day-to-day practice of health information management. But there are lots of examples of a national approach to many of the initiatives which we now accept as part of our daily work.
|
Details | |
| 1999 Jun
|
Crisis, leadership, consensus: the past and future federal role in health
|
Boufford JI;
|
This paper touches on patterns of federal government involvement in the health sector since the late 18th century to the present and speculates on its role in the early decades of the 21st century.
|
Details | |
| 1999 Feb
|
67 years on the national health
|
Hughes JM;
|
|
Details | |
| 1999
|
National health care providers' database (NHCPD) of Slovenia--information technology solution for health care planning and management
|
Albreht T;Paulin M;
|
The setting up of a completely revised health care providers' database in Slovenia is an important step in the development of a uniform and integrated information system that would support top decision-making processes at the national level
|
Details | |
| 1999
|
Role of clinical trials informatics in the NCI's cancer informatics infrastructure
|
Silva J;Wittes R;
|
A Web-enabled Cancer Informatics Infrastructure (CII) will enable faster, better clinical trials, ultimately improving cancer care. To create the CII, the National Cancer Institute is forming public-private partnerships and building on existing activities. Key innovations include development of standards for cancer patient information and clinical research, management of patients using disease specific 'clinical states' and use of drag and drop electronic protocol authoring
|
Details | |
| 1998 Sep 16
|
The urgent need to improve health care quality. Institute of Medicine National Roundtable on Health Care Quality
|
Chassin MR;Galvin RW;
|
Quality of care is the problem, not managed care. Current efforts to improve will not succeed unless we undertake a major, systematic effort to overhaul how we deliver health care services, educate and train clinicians, and assess and improve quality
|
Details | |
| 1998 Oct 21
|
Access to health information and support: a public highway or a private road?
|
Eng TR;Maxfield A;Patrick K;Deering MJ;Ratzan SC;Gustafson DH;
|
Information and communication technologies may help reduce health disparities through their potential for promoting health, preventing disease, and supporting clinical care for all.
|
Details | |
| 1998 Nov
|
A model for achieving total quality-management information technology infrastructure within an integrated delivery system
|
Tan JK;
|
The strategic development and deployment of a health management information technology infrastructure is discussed from two perspectives for radiologists and for other medical technologists: the integrated delivery system (IDS) perspective and a total quality-management (TQM) perspective.
|
Details | |
| 1998 Nov
|
Health information policy: on preparing for the next war
|
Moran DW;
|
As policymakers demand more and better information about health care, the private health information technology industry is investing heavily to produce the 'paperless clinical enterprise' of the future: the infrastructure that will be required to satisfy those demands. Developments on a number of policy fronts, however--from medical privacy legislation to clinical software regulation to 'telehealth'--suggest the need for a conscious health information policy that will inform the debate in each niche area with a larger sense of whether public policy will promote or retard private innovation in this area.
|
Details | |
| 1998 Jun
|
Total quality in information systems management: issues for the health care industry
|
Leonard KJ;
|
Faced with rising costs, growing demand and declining funding, hospitals and others must either cut services or improve the efficiency and effectiveness of what they do. A first step towards a solution is to create a database containing detailed health care patient data. In this paper, we present continuous improvement techniques as a requirement for the design and development of this much needed database
|
Details | |
| 1998 Dec
|
Meeting information needs in health policy and public health: priorities for the National Library of Medicine and The National Network of Libraries of Medicine
|
Humphreys BL;
|
The National Library of Medicine and the National Network of Libraries of Medicine are working to enhance information services in health policy and public health through expanding the coverage of the NLM collection, building new databases, and engaging in targeted outreach and training initiatives directed toward segments of the health policy and public health communities.
|
Details | |
| 1998 Aug
|
Two routes to privacy protection: a comparison of health information legislation in Canada and the United States
|
Plater S;Seeley E;Dixon LA;
|
The privacy of health information is a subject of great sensitivity in both Canada and the United States. As a result of public demands for more effective protection of such information as medical records, Canada and, particularly, its provincial governments, have implemented extensive legislation. The United States, on the other hand, has largely confined its efforts to private sector initiatives that are more reflective of voluntary codes than legal statutes. Because new technologic developments facilitate data sharing in the medical field, especially in the face of a continual reduction of healthcare budgets, the concern for privacy protection in this domain has intensified.
|
Details | |
| 1998 Apr 22
|
A national action plan to meet health care quality information needs in the age of managed care
|
Shaller DV;Sharpe RS;Rubin RD;
|
Concerted national action is needed to meet the growing demand for health care quality information among all health care stakeholders. We propose a coordinated national network of independent, public-private quality measurement alliances established through strong purchaser and consumer leadership at the state, regional, or local levels.
|
Details | |
| 1998 Apr
|
Comprehensive health data systems spanning the public-private divide: the Massachusetts experience
|
Stone EM;Bailit MH;Greenberg MS;Janes GR;
|
As systems of health care delivery have evolved from claims-based fee-for-service to capitated or managed care, with its emphasis on cost-effectiveness, quality, and performance measurement, some states have begun to experiment with new ways to collect, organize, and share health information. The activities of two public-private coalitions, the Massachusetts Healthcare Purchaser Group and the Massachusetts Health Data Consortium, have been critical in initiating and supporting the complex processes that have led to significant changes in state-based systems of health information
|
Details | |
| 1997 Mar
|
The future of the IAIMS in a managed care environment: a call for private action and public investment
|
Detmer DE;
|
A national public and private 'grand challenge' initiative should be undertaken to assure the American public that the telecommunications and computing revolutions improve health care, health education, and biomedical and health services research, and secure accountability for cost, quality, and access.
|
Details | |
| 1997 Mar
|
What can you publish in T-ITB?
|
Laxminarayan SN;
|
IEEE Transactions on Information Technology in Biomedicine will focus on applications reflecting global information technology advances in medicine and biology and will further address the implementation and management of the broad spectrum of health care innovations arising from these developments worldwide
|
Details | |
| 1997 Jul
|
Measuring and improving quality and performance in an evolving health-care sector
|
Lohr KN;
|
How can the challenges of quality measurement, assurance, and improvement be met at the national, state, and community levels? Can we sustain high levels of quality of care in an evolving health sector that wants to control costs and needs to extend access to millions of people? Can we find new ways to measure clinical practice performance and improve quality that will work more effectively in both the private and public sectors? All these questions demand answers in the context of contemporary circumstances
|
Details | |
| 1997 Jul
|
Serious technology assessment for health care information technology
|
Cushman R;
|
United States health care is engaged in an ambitious project to make its clinical and administrative records '100% electronic.' Substantial benefits are expected in both clinical care delivery and medical research (especially for public health surveillance and outcomes/effectiveness studies). Substantial costs also potentially accrue, beyond the large outlays for an expanded computer and telecommunications infrastructure. Privacy and confidentiality are obviously at risk if such systems cannot be made secure.
|
Details | |
| 1997 Dec
|
Personal privacy in the health care system: employer-sponsored insurance, managed care, and integrated delivery systems
|
Gostin LO;
|
Widespread collection and use of identifiable information can promote social goods while, at the same time, infringing on personal privacy. The doctrine of informed consent is flawed and does not provide sufficient control over personal information to assure adequate protection of privacy
|
Details | |
| 1997 Dec
|
United States vaccine research: a delicate fabric of public and private collaboration. National Vaccine Advisory Committee
|
|
The National Vaccine Advisory Committee has set forth recommendations aimed at developing public policies to foster and sustain vaccine innovation and ensure the timely introduction and supply of new vaccines needed by this nation and the world.
|
Details | |
| 1997
|
Challenges of Global Health: How Can We Do Better?
|
Mahler H;
|
|
Details | |
| 1997
|
Developing leaders in public health: the role of executive training programs
|
Halverson PK;Mays G;Kaluzny AD;House RM;
|
The growing complexity of the nation's health care system is creating new challenges and opportunities for public health officials, and a renewed concern for leadership training among these officials. A focus group conducted with public health officials at local, state, and national levels reveals perceptions about the predominant trends effecting public health practice, the leadership skills required for effective public health practice, and the strategies that are needed for providing appropriate leadership training to public health executives.
|
Details | |
| 1997
|
Home care in Canada
|
Sorochan MW;
|
This is an overview of the home care sector's evolution in Canada, including current models and delivery structures, funding, eligibility criteria, and services provided. Cost escalations of the traditional healthcare system and a reduction in federal funding has driven health reform in Canada.
|
Details | |
| 1996 Oct
|
Socio-technical aspects of the use of health related personal information for management and research
|
Iversen KR;Grotan TO;
|
This paper focuses on the organizational, technical and ethical aspects related to the use of person identifiable health information for various health care management, administration, finance, research and educational purposes. It is based on the ethical standpoint that to the individuals in question, the identifiable health information represents the uttermost sensitive and critical information.
|
Details | |
| 1996 Jul
|
A regional integrated information system to assure maternal-child health services: a progress report
|
Wei F;Wright K;Heaton T;Kincaid W;
|
Priorities for improving the health of our nation include rebuilding the public health infrastructure through increasing assessment, policy development, and assurance capacities in our communities. The Tracking Center of Tracking and Outreach Program for St. Louis (TOPS), through unique collaboration among academic and practice partners, laid the foundation for a Regional Integrated Information System (RIIS) by developing a centralized maternal-child health data base for prenatal and pediatric care providers
|
Details | |
| 1996 Jul
|
The federal role in the health information infrastructure: a debate of the pros and cons of government intervention
|
Shortliffe EH;Bleich HL;Caine CG;Masys DR;Simborg DW;
|
This paper addresses the pros and cons of government involvement in coordinating and encouraging a more rapid and effective implementation of clinically relevant applications of wide-area networking. The private sector is recognizing the importance of these issues as well and will, when the market demands it, adopt and enhance the telecommunications systems that are needed to produce effective uses of the National Information Infrastructure (NII) by the healthcare community.
|
Details | |
| 1996 Feb
|
Why a National Committee?
|
Chabbert YA;
|
|
Details | |
| 1996
|
Improving and integrating data systems for public health surveillance
|
Madans JH;Hunter EL;
|
The National Center for Health Statistics (NCHS) is the nation's principal health statistics agency, with a primary mission to collect, disseminate, and analyze health data. NCHS is working on a number of fronts to improve and better integrate data systems so that they will be more useful for public health surveillance.
|
Details | |
| 1996
|
Information and surveillance systems and community health: building the public health information infrastructure
|
Baker EL;Ross D;
|
Public health leaders must focus on the entire information infrastructure. Surveillance and information systems need to evolve to include targeting and evaluating community-wide prevention programs.
|
Details | |
| 1996
|
Telemedicine and security. Confidentiality, integrity, and availability: a Canadian perspective
|
Jennett P;Watanabe M;Igras E;Premkumar K;Hall W;
|
The health care system is undergoing major reform, characterized by organized delivery systems (regionalization, decentralization, devolution, etc); shifts in care delivery sites; changing health provider roles; increasing consumer responsibilities; and accountability. Rapid advances in information technology and telecommunications have led to a new type of information infrastructure which can play a major role in this reform.
|
Details | |
| 1995 Oct
|
National Patient Master Index in Singapore
|
Tan LT;
|
Singapore: The National Patient Master Index (NPMI) system was conceived and implemented by the Singapore Ministry of Health. The NPMI system aims at providing a patient database at national level that allows authorizd users faster access to a patient's essential medical data thereby facilitating patient management. This paper describes the implementation of the NPMI system, its data elements, system functionality and access control to address data confidentiality and privacy.
|
Details | |
| 1995 Oct
|
The Philippine management information system for public health programs, vital statistics, mortality and notifiable diseases
|
Marte BA;Schwefel D;
|
Strengthening the information support for decision making has been identified as an important first step toward improving the efficiency, effectiveness, and equitability of the health care system in the Philippines. A Philippine-German Cooperation is in partnership toward developing a need-responsive and cost-effective Health and Management Information System (HAMIS).
This paper discusses BLACKBOX -- the management information system for public health programs, vital statistics, mortality and notifiable diseases of the Philippines.
|
Details | |
| 1995 May
|
The High-Performance Computing and Communications program, the national information infrastructure and health care
|
Lindberg DA;Humphreys BL;
|
The High-Performance Computing and Communications (HPCC) program is a multiagency federal effort to advance the state of computing and communications and to provide the technologic platform on which the National Information Infrastructure (NII) can be built. The HPCC program supports the development of high-speed computers, high-speed telecommunications, related software and algorithms, education and training, and information infrastructure technology and applications.
|
Details | |
| 1995 Mar
|
Health information privacy
|
Gostin LO;
|
|
Details | |
| 1995
|
Beyond informatics: an electronic community infrastructure for public health
|
Milio N;
|
Public health agencies are in the early stages of building an electronic infrastructure that will link them to each other and eventually to the 'information superhighway.' Emphasis in planning and development is on data systems and the information and training services that can enhance essential public health services.
|
Details | |
| 1995
|
Working towards a national health information system in Australia
|
Bomba B;Cooper J;Miller M;
|
Australia needs to develop a coherent national health information infrastructure policy to ultimately avoid fragmented, duplicated and incompatible systems that rely on different standards and protocols. Such a policy will only work by addressing the key issue of patient privacy within a technological framework. The application of IT to health care systems is a sensitive social experiment affecting many professions including general practitioners, medical administrators, politicians, lawyers, computer specialists, privacy advocates and patients whose records will ultimately reside in the system.
|
Details | |
| 1994 Oct 12
|
Adult immunization. Summary of the National Vaccine Advisory Committee Report
|
Fedson DS;
|
Vaccine-preventable infections of adults represent a continuing cause of morbidity and mortality. Effective and safe vaccines against these diseases are available, but they are poorly used. This paper describes the Public Health Service adult immunization goals for the year 2000.
|
Details | |
| 1994 Jun
|
Epidemiology of Chronic Health Conditions in Adolescents
|
Westbrook LE;Stein RE;
|
Knowledge of the epidemiology of chronic conditions in adolescents is necessary to ensure that these patients 'do not slip through the cracks in our health care infrastructure.' This comprehensive chapter reviews the major sources of epidemiologic data and the limitations of such data, presents sociodemographic characteristics of adolescents with chronic health conditions, and compares and contrasts prevalence rates
|
Details | |
| 1994 Jan
|
Global information infrastructure
|
Lindberg DA;
|
The High Performance Computing and Communications Program (HPCC) is a multiagency federal initiative under the leadership of the White House Office of Science and Technology Policy, established by the High Performance Computing Act of 1991. It has been assigned a critical role in supporting the international collaboration essential to science and to health care.
|
Details | |
| 1994 Jan
|
Health care data standards are required for medically effective use of workstations
|
Fitzmaurice JM;
|
Uniform, accurate, and longitudinal patient care data is needed for greater quality and efficiency in institutional and ambulatory care.
There may be a role for the Federal Government to work with the private sector to accelerate needed health care data standards. This paper suggests activities that help to define this role.
|
Details | |
| 1994 Jan
|
The new informatics of national healthcare reform
|
Manderscheid RW;Henderson MJ;
|
The President's Health Security Act has succeeded in attracting America's attention. The act includes a number of implications for healthcare informatics, and devotes an entire chapter to this subject, although this area has not received as much publicity. Preparation to meet the information demands of the evolving healthcare system will require adaptation of existing computerized information systems, utilization of new technology, consultation with the system's major shareholders and attention to continuous quality improvement processes.
|
Details | |
| 1994 Aug
|
The Health Security Act and improving the quality of care: will the Clinton reforms help or hinder?
|
Brennan TA;
|
Maintaining and improving the quality of care is central to the Health Security Act, according to this in-depth analysis of the Act's intended quality reforms.
|
Details | |
| 1994 Apr
|
Gearing up for health data in the information age
|
Donaldson MS;
|
This summary focuses on public disclosure--the publication of provider-specific (but non-person-identified) information to improve health care and the delivery of health services. It also summarizes participant discussions about quality-of-care research in health database organizations, as well as issues related more broadly to the creation of a health data infrastructure
|
Details | |
| 1994 Apr
|
Information needs of rural health care practitioners in Hawaii
|
Lundeen GW;Tenopir C;Wermager P;
|
Rural health care workers need a wide range of specialized information but have difficulties locating and accessing information resources. The information needs of Hawaii's rural health care practitioners and their methods of accessing information were studied.
|
Details | |
| 1992 Nov
|
Strengthening the public health system
|
Roper WL;Baker EL;Dyal WW;Nicola RM;
|
To strengthen the public health system, concerted action is needed to meet critical needs including the need to improve access to information resources. State-of-the-art technologies will be deployed to create integrated information and communication systems linking all components of the public health system.
|
Details | |
| 1990 Jul
|
Role of information systems in public health services
|
Hartshorne JE;Carstens IL;
|
The purpose of this review is to establish a conceptual framework on the role of information systems in public health care.
With a well-planned health information system health authorities would be in a position to provide a quality, cost-effective and efficient health service for as many people as need it, optimal utilization of resources and to maintain and improve the community's health status.
|
Details | |
| 1987 Jan
|
The National Technical Information Service: a Federal resource for health information and services
|
Bracken DD;
|
To bring the Federal research and development (R & D) community together with potential non-Federal users, the Center for the Utilization of Federal Technology (CUFT) provides information products and undertakes networking activities in its Office of Applied Technology. The program initiates the link from the public to private sector for commercialization of newly developed Federal technology in its Office of Federal Patent Licensing.
|
Details | |