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This paper offers a guide for
evaluating activities designed to increase organ donation. While the organ donation
community has been very active in attempts to increase organ donation, there has not been
a concerted effort to determine the best methodologies for evaluating these activities.
Although many activities have been evaluated at some level (e.g., counting donor card
signatures), there is relatively little understanding about how these activities relate to
the goal of increasing the number of organs available for transplantation. (Appendix B
provides an overview of evaluations of organ donation activities.) Well-planned and
methodologically sound evaluations, coupled with program goals and timeframes, provide the
cornerstone for understanding program effectiveness. Rigorous evaluations of activities
designed to increase organ donation will better inform resource allocation among
alternative and complementary programs. The organ
donation community is not alone in its intent to develop methodologically sound strategies
for evaluating its activities. Recently, similar evaluation efforts have focused on
evaluating such behavior modification programs as: smoking and substance abuse prevention
and recovery programs, programs to increase use of mammography and other forms of cancer
screening, physical activity promotion efforts, occupational health activities, and other
health education programs. For example, a review of AIDS education program evaluations in
1990 found that many of the evaluations failed to use standard evaluation designs (e.g.,
time series) and had no information linking changes in knowledge to behavior changes
(Forst 1990). Other behavioral modification evaluations have been more successful in
applying rigorous evaluation designs. (Appendix C provides an overview of evaluations in
these areas).
This paper outlines the three essential components of a
successful evaluation, namely: 1) rigorous evaluation methodology, 2) tested performance
indicators, and 3) an activity to evaluate that is related to the ultimate goal of the
program. Exhibit 1 provides an overview of these elements and how they inform and
influence each other. The paper begins with an overview of evaluation methods and a
discussion of the relative merits of such methods. It then turns to a discussion of the
performance indicators appropriate for organ donation activities. Finally, the paper
presents examples of evaluation elements for selected types of organ donation activities.
Exhibit 1: Overview of Evaluation Planning

Source: Lewin, 1998 |