Data Council Work Plan

Agenda Item 4.

Serve as focus for HHS issues relating to privacy of health and social services information.

Objective 1. Focus attention on privacy issues as they arise during the Data Council's discussions of health and social services data issues and formulation of health and social services data policies.

The Council would carry out the following activities:

1. Develop and institutionalize a system for identification and consideration by the Council of the privacy implications of all data issues within the scope of the Council
2. Continue the inquiry, now being conducted by the Council's Privacy Working Group, into special issues in design of legal and other protections for health information created by computerization, telecommunications, and organizational changes in health care.
3. Work with standards organizations to identify, develop, and disseminate best practices for protecting privacy of individually identifiable information in electronic health information systems.
   1. Continue work with the Computer Science and Telecommunications Board of the National Research Council to determine best practices for ensuring privacy and appropriate access.
   2. Continue development of bibliographical material on privacy, confidentiality, and security.
4. Develop model information privacy legislation, regulations, and institutional policies for states and private entities.

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Last updated 7/3/96.