HHS Logo: bird/facesU.S. Department of Health and Human Services

Private Payers Serving Individuals with Disabilities and Chronic Conditions

Executive Summary

Ronald J. Ozminkowski, Ph.D., Mark W. Smith, Ph.D., Rosanna M. Coffey, Ph.D., Tami L. Mark, Ph.D., Cheryl A. Neslusan, Ph.D., and John Drabek, Ph.D.

January 2000


This report was prepared under contract between the U.S. Department of Health and Human Services (HHS), Office of Disability, Aging and Long-Term Care Policy (DALTCP) and The MEDSTAT Group. For additional information about the study, you may visit the DALTCP home page at http://aspe.hhs.gov/daltcp/home.htm or contact the ASPE Project Officer, John Drabek, at HHS/ASPE/DALTCP, Room 424E, H.H. Humphrey Building, 200 Independence Avenue, SW, Washington, DC 20201. Her e-mail address is: jdrabek@osaspe.dhhs.gov.



Most people receive their health insurance through employer-sponsored plans. Yet little is known about the prevalence of chronic conditions and disabilities among plan enrollees. Similarly, employer-sponsored plans make extensive use of managed care, but little is known about the impact of managed care on those with severe chronic illness. This study was funded by the Office of Disability, Aging, and Long-Term Care Policy of the U.S. Department of Health and Human Services to better understand the role of private insurance plans in caring for people with chronic conditions and disabilities. It estimates the prevalence of chronic illness, analyzes the factors affecting the choice of indemnity plans versus managed care, and estimates the impact of managed care on service use and expenditures. The study also investigates the leading risk adjustment systems as a possible method for paying plans more appropriately in serving this population.

A. Background--Chronic Illness and Managed Care

Chronic illness and functional disability occur surprisingly frequently among the population of the United States. Roughly 14 percent of adults between the ages of 18 and 65 experience a disability that limits their functional activity level (Adler, 1995). In addition, as many as 31 percent of children have special health care needs due to chronic illness or functional limitations (Harris-Wehling and Ireys, 1995).

Chronically ill and disabled individuals often require a broad range of health and social services to maximize functional abilities and improve health status. Managed care has been touted as having great potential for those with disabling chronic illness because a single case manager can take responsibility for guiding patients through the maze of services and providers that may be necessary to treat chronic conditions. However, managed care also has been equated with “managed cost,” implying that more consideration is given to reducing costs than to patient health and functioning. Which view is more accurate?

Nearly 50 percent of disabled people in the United States are covered by managed care plans (Fama, Fox and White, 1994), yet little research has been done to determine whether managed care is more or less beneficial to them than traditional indemnity health insurance. This is especially true for those covered outside of Medicare or Medicaid by private sector, employer-based plans.

B. Study Questions

The Private Payers Study represents a major step in the development of knowledge concerning chronically ill individuals covered by private health plans--a knowledge base that will aid both government policymakers and private firms interested in reducing costs, expanding health care choices, and assuring appropriate care.

The study attempts to answer the following questions:

  1. What is the prevalence of chronic illness and disability among the population enrolled in employer-based health insurance plans?

  2. Are individuals with chronic illness more or less likely to choose managed care or indemnity plans, if given a choice?

  3. How does the type of health plan selected by chronically ill and disabled enrollees affect their service use and cost, after accounting for differences in enrollee characteristics?

  4. To what extent can risk-adjustment systems help employers and health plans predict expenditures of their chronically ill and disabled enrollees?

Further discussion of these questions is preceded by a description of the employers we studied and their health plans, how we identified individuals with potentially disabling chronic illness, and the statistical methods we used.

C. Methods

1. Selection of Employers and Health Plans

The Private Payers Study was based on administrative claims for reimbursement of health care services, submitted under private-sector insurance plans by two large firms. To preserve their confidentiality we will refer to them as Employer A and Employer B. Table E-1 compares their health insurance arrangements.

Employer A is a large firm with offices in more than 30 cities across the country. In 1995, its health plans covered over 400,000 people. Employer A offered two health plans at each location. One was an indemnity plan. Indemnity plans, sometimes called fee-for-service (FFS) plans, do not have a predetermined network of providers; enrollees receive similar reimbursement for care by any provider. The other offering was a particular type of managed care plan called a point-of-service (POS) plan. It arranged a network of providers but also covered services outside the network, while penalizing individuals financially for seeking care outside the network. The POS assigned each member a primary care gatekeeper and required the gatekeeper’s approval for specialist visits.

Employer B is a large state government. In 1995, its health plans covered over 200,000 people. Employer B offered seven health maintenance organizations (HMOs), one indemnity plan, and one preferred provider organization (PPO). The HMOs did not reimburse expenses for health care by providers outside of their networks. The PPO, like the POS plan of Employer A, reimbursed enrollees for care outside its network, but at a higher coinsurance rate to employees. Unlike the POS, however, the PPO did not assign a primary gatekeeper.

TABLE E-1. Characteristics of Study Population, 1995
Sponsor Number of Employees Plan Type (Number) Network of Providers? Out-of-Network Reimbursement?
Employer A >400,000 Indemnity (1) No Yes
Point of Service (1) Yes Yes
Employer B >200,000 Indemnity (1) No Yes
Health Maintenance Organization (7) Yes No
Preferred Provider Organization (1) Yes Yes, with high copayments

2. Study Population

To study the experiences of chronically ill and disabled people in private health plans, we had to find which employees (and dependents) had potentially disabling chronic conditions. In the Private Payers Study we did this by classifying diagnoses from claims and encounter records in two ways. One was based on clinical judgment. The other relied on results of a study in the literature that used responses to a major national survey to identify disabling conditions. The two methods, described briefly below, are described in more detail in Chapter 4.

In an earlier report, researchers at The MEDSTAT Group (Crown et al., 1998b) developed a set of criteria for identifying potentially disabling chronic illness on the basis of diagnosis codes and other information available in medical claims databases. Potential disability was defined as any mental or physical problem that typically results in loss of normal functioning. Many diagnosis codes for physical and mental conditions are indicative of a potentially disabling chronic condition by themselves, while others are indicative of such impaired health status only at later stages of disease. Also, although there are broad areas of overlap between the physical and mental criteria for children and adults, some conditions are specific to each age group.

Potentially disabling chronic conditions were identified through several steps. First, a clinical coding specialist selected conditions thought to potentially result in partial or total disability. Any conditions known to be invariably terminal were excluded from consideration. The preliminary list of conditions was forwarded to a consulting physician for judgment regarding the appropriateness of inclusion. This list was then reviewed by staff at ASPE and further revised by the coding specialist and physician. The result of this process was a detailed list of over 300 ICD-9-CM diagnosis codes for adults and over 300 for children that were applied to the medical claims data.

There is an alternative definition of disabling chronic illness that focuses on activity limitations. Developed by LaPlante (1989) using the 1983-1986 waves of the National Health Interview Survey, it includes 37 conditions (20 for adults and 17 for children) that were found to be highly correlated with limitations in activities of daily living. As Appendix A shows, some but not all of the activity-limiting conditions are also per se disabling conditions as defined by Crown et al. (1998). In some of the analyses conducted during this project comparisons were made between the two definitions of disability.

D. Statistical Methods

Several different analyses were performed during this project, which focused primarily on differences between those choosing indemnity or managed care options. Comparisons of several measures of personal characteristics, service use, and expenditures were made for key non-elderly sub-populations--active employees, dependent children and spouses, and early retirees. Raw differences were tabulated for several measures, and standard tests of statistical significance were applied. Such comparisons get at the gross differences between groups.

Simple comparisons, however, cannot disentangle differences in the characteristics of enrollees among plans from differences in the effect of plans on utilization. To identify the effect of managed care on health care utilization and expenditures, differences in enrollee characteristics across plans need to be accounted for. Higher utilization and expenditures in one insurance type relative to another may reflect underlying differences in enrollees as well as differences in the plan themselves. For example, if older individuals tend to choose indemnity plans over managed care plans and are also less healthy, then a finding of higher utilization and payments in indemnity insurance may be solely attributable to the age variation among the plan types, not to the plan itself.

We then estimated the effect of plan type on utilization and expenditures controlling for two categories of confounding influences: patient characteristics available in our data and unmeasured factors systematically related to insurance choice. This second category is important to consider since a patient’s true health is not completely observable to insurers. “Adverse selection” occurs if people whose poor health is unknown to insurers choose more generous plans. In this case, premiums will not accurately reflect costs in the population. In response, insurance plans will have an incentive to raise premiums, which may price some individuals out of the market.

To some extent the greater burden of people with chronic illness on plans could be alleviated if payments to plans were adjusted for the population they serve. Some employers and insurers differentiate on the basis of certain characteristics, for instance having separate policies for families and individuals or for active employees and retirees. A number of risk-adjustment models have been proposed to pay plans more appropriately. In this study, four systems--Hierarchical Coexisting Conditions (HCCs) with employer-specific adjustment factors, HCCs with pre-determined adjustment factors, Adjusted Clinical Groups (ACGs), and Adjusted Diagnostic Groups (ADGs)-- were applied to the employer data. The implications for total health expenditures, and for mental health expenditures alone, were estimated.

1. Study Findings

This project used evidence from medical claims databases of two employers to answer the four questions raised above about how health plans managed the care of chronically ill enrollees. The main findings are noted briefly below. More in-depth findings and discussions are contained in the full report.

Question 1: What is the prevalence of chronic illness and disability among the population enrolled in employer-based health insurance plans?

Findings:

Question 2: Are individuals with chronic illness more or less likely to choose managed care or indemnity plans, if given a choice?

Findings:

Question 3: What is the impact of health-plan type on utilization and expenditures, taking into account differences in the populations that enroll in different types of insurance plan?

Findings:

These results suggest that the apparent relative efficiency and cost savings of managed care versus indemnity may be significantly affected by underlying casemix differences. Furthermore, such differences may be difficult to predict without detailed data on plan enrollees, especially since casemix may depend critically on the relative prices of the plans. Employers and policymakers must closely investigate the relationship between health-plan type and cost savings in competing plans.

Question 4: To what extent can risk-adjustment systems help employers and health plans predict expenditures of their chronically ill and disabled enrollees?

To answer this question, we must explain the concept of risk adjustment and the systems we tested. Risk adjustment is a tool to achieve more precise methods of payment to health plans than has been traditionally used. It attempts to account for the higher-than-average cost of treating people who are expected to be high service users. By improving the match between payments and actual expenditures, a risk-adjustment system reduces the incentive of insurers to avoid potentially expensive users, including those with chronic illness, by offering less generous benefits. Employers can use risk adjustment to set capitated rates for plans, or if they are self-insured, to assist in judging plans’ efficiency.

Age, sex, and region are the categories used most often by insurers to set premiums for employees and employers. We investigated the ability of leading risk- adjustment systems to predict the expenditures of those having potentially disabling chronic conditions relative to what insurers normally use. The systems we studied were Hierarchical Coexisting Conditions (HCCs) with employer-specific adjustment factors, HCCs with pre-determined adjustment factors, Adjusted Clinical Groups (ACGs), and Adjusted Diagnostic Groups (ADGs).

To predict total health care expenditures, we used these systems to study 10 different groups of potentially disabling chronic conditions: arthritis, asthma, cancer, chronic obstructive pulmonary disease, diabetes, heart failure, psychiatric disorders, seizure disorders, stroke, and ulcerative colitis. Full details of the study and results are described in Chapter 8.

Findings:

Conclusions:

Our main conclusions for employers and other purchasers of health insurance include the following:

E. Future Research

The four studies answer some basic questions about the experience of people with potentially disabling chronic conditions in private-sector health care plans. They augment our knowledge in several key areas: the prevalence of potentially disabling chronic conditions among privately insured individuals; relationships between managed care coverage and service utilization and expenditures; and better ways to pay plans for services covered. This information can be used by corporate leaders and government policymakers to provide incentives for health plans to recruit, accept, and appropriately care for those with chronic conditions.

At the same time, this research raises a number of questions that deserve further study. Below are topics for further research, each of which will aid our understanding of how private-sector health plans treat those with chronic illnesses and how corporate leaders and public policymakers can use this information.

The answers to these questions could greatly enhance the existing knowledge base that corporate and public policymakers draw upon when considering methods for better meeting the needs of people with potentially disabling chronic conditions.

The Full Report is also available from the DALTCP website (http://aspe.hhs.gov/daltcp/home.htm) or directly at http://aspe.hhs.gov/daltcp/reports/privpay.htm.