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***** DRAFT NATIONAL PLAN AVAILABLE*****
***** JANUARY MEETING SUMMARY AVAILABLE*****
***** PUBLIC COMMENTS UPDATED*****
***** LISTSERV NOW AVAILABLE *****
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Alzheimer's disease and related dementias (ADRD) are debilitating conditions that impair memory, thought processes, and functioning, primarily among older adults. The effects of these diseases can be devastating, both for individuals afflicted with ADRD and for their families. People with ADRD may require significant amounts of health care and intensive long-term services and supports -- including, but not limited to, management of chronic conditions, help taking medications, round-the-clock supervision and care, or assistance with personal care activities, such as eating, bathing, and dressing. In the United States, ADRD affects as many as 5 million people and nearly 40% of the population aged 85 and older. Roughly 13.2 million older Americans are projected to have ADRD by 2050.
The U.S. Department of Health and Human Services (HHS) is working to identify how to prevent ADRD and to address the challenges faced by people with these conditions and their caregivers. The National Institute on Aging leads the National Institutes of Health's efforts in clinical, behavioral and social research into Alzheimer's disease, aimed at finding ways to treat and ultimately prevent the disorder. The Centers for Disease Control and Prevention is working to implement the Healthy Brain Initiative, including assisting with monitoring the public health burden of cognitive impairment and enhancing understanding about how diverse groups perceive cognitive health. The Administration on Aging Alzheimer's Disease Supportive Services Program is helping to create responsive, integrated, and sustainable service delivery systems for people with dementias and their caregivers.
The National Alzheimer's Project Act (NAPA) creates an important opportunity to build upon and leverage HHS programs and other federal efforts to help change the trajectory of ADRD. The law calls for a National Plan for ADRD with input from a public-private Advisory Council on Alzheimer's Research, Care and Services. The Advisory Council will make recommendations to HHS for priority actions to expand, coordinate, and condense programs in order to improve the health outcomes of people with ADRD and reduce the financial burden of these conditions on those with the diseases, their families, and society.
In order to inform the National Plan for ADRD, HHS has partnered with the Department of Veterans Affairs (VA), the National Science Foundation (NSF), and the Department of Defense (DoD) to convene an Interagency Group on Alzheimer's Disease and Related Dementias. The group includes HHS representatives from the Office of the Assistant Secretary for Planning and Evaluation (ASPE), Office of the Assistant Secretary for Health (OASH), National Institute on Aging (NIA), Centers for Medicare and Medicaid Services (CMS), Centers for Disease Control and Prevention (CDC), Administration on Aging (AoA), Health Resources and Services Administration (HRSA), Agency for Healthcare Research and Quality (AHRQ), Substance Abuse and Mental Health Services Administration (SAMHSA), Food and Drug Administration (FDA), Indian Health Service (IHS), and Administration for Children and Families (ACF). The Interagency Group is working to carry out NAPA's charges to coordinate research and services across agencies, accelerate the development of ADRD treatments, improve early diagnosis and coordination of care, reduce ethnic and racial disparities in rates of ADRD, and coordinate with international efforts to fight these conditions. The plan this group is developing will be presented to the Advisory Council for review.
A document which includes comments received about the National Plan, Alzheimer's and NAPA is available at http://aspe.hhs.gov/daltcp/napa/Comments/PubCom.shtml. New comments, and their attachments, will be added monthly.
The Advisory Council will consist of at least 22 members and will meet quarterly to discuss the efficacy of government programs targeting the needs of individuals and caregivers coping with the consequences of ADRD. This Advisory Council will provide comments on the National Plan for ADRD that will be developed by HHS as they carry out NAPA. The Advisory Council shall review and comment on the draft National Plan and make recommendations for priority actions. On an annual basis, the Advisory Council shall evaluate the implementation of the recommendations through an updated National Plan.
HHS is soliciting nominations for Advisory Council members. Members from outside of the Federal Government will include two patient advocates, two caregivers, two health care providers, two representatives of state health departments, two researchers, and two voluntary health association representatives. Nominations should include the nominee's contact information (current mailing address, e-mail address, and telephone number) and a current curriculum vitae or resume. These were due by June 30, 2011.
The following people have been invited to serve as non-federal Advisory Council members:
Ronald Petersen, Ph.D., M.D. -- Chair (Biography)
Anita Albright, M.A. (Biography)
Laurel Coleman, M.D., FACP (Biography)
Eric Hall (Biography)
David Hoffman, M.Ed. (Biography)
Harry Johns (Biography)
Jennifer Manly (Biography)
Helen Matheny (Biography)
David Hyde Pierce (Biography)
Laura Trejo (Biography)
George Vradenburg (Biography)
Geraldine Woolfolk (Biography)
The following people will represent federal agencies:
Lynda Anderson, Ph.D. (Affiliation)
Regina Benjamin, M.D. (Affiliation)
James F. Burris, M.D. (Affiliation)
Bruce Finke, M.D. (Affiliation)
Victor Freeman, M.D., M.P.P. (Affiliation)
Richard Hodes, M.D. (Affiliation)
Russell Katz, M.D. (Affiliation)
Donald B. Moulds, Ph.D. (Affiliation)
Cindy Padilla (Affiliation)
Anand Parekh, M.D., M.P.H. (Affiliation)
Kathryn Power, M.Ed. (Affiliation)
William Shrank, M.D., M.S.H.S. (Affiliation)
William Spector, Ph.D. (Affiliation)
Amber L. Story, Ph.D. (Affiliation)
Colonel Brian K. Unwin (Affiliation)
The next meeting of the Advisory Council on Alzheimer's Research, Care, and Services will be held on Tuesday, January 17, 2012 from 9:30am to 4:00pm and Wednesday, January 18, 2012 from 9:00am to 2:00pm at the U.S. Department of Health and Human Services (HHS), 200 Independence Avenue, S.W., Room 800, Washington, D.C. 20201.
A representative from HHS will present an overview of the Draft National Plan to Address Alzheimer's Disease. The chairs of the three subcommittees (Research, Clinical Care, Long-Term Services and Supports) will summarize the feedback on the draft plan from their subcommittees and suggest recommendations for discussion among the full Advisory Council. The Advisory Council will discuss and, as appropriate, vote upon recommendations to the Secretary of HHS on the Draft National Plan to Address Alzheimer's Disease. The Advisory Council will also discuss how to engage stakeholders outside of the Federal Government in the writing and implementation of the National Plan. The Advisory Council will allow an open public session for any attendee to address issues or topics that should be addressed in the National Plan.
Public Attendance: We are asking that those wishing to attend the meeting in person e-mail Dr. Helen Lamont at Helen.Lamont@hhs.gov by COB Tuesday, January 10, 2012, so that their names may be put on a list of expected attendees and forwarded to the security officers at HHS. Any interested member of the public who is a non-U.S. citizen should include this information at the time of registration to ensure that the appropriate security procedure to gain entry to the building is carried out. Although the meeting is open to the public, procedures governing security and the entrance to federal buildings may change without notice.
Public Input: Time is allocated on the agenda to hear public comments at the end of the meeting. In lieu of oral comments, comments may be sent to NAPA@hhs.gov. Formal written comments may also be submitted for the record to:
Helen Lamont, Ph.D
HHS Office of the Assistant Secretary for Planning and Evaluation
Room 424E, Humphrey Building
200 Independence Avenue, SW
Washington DC, 20201
Those submitting written comments should identify themselves and any relevant organizational affiliations. Comments will be shared with the Advisory Council.
The meeting with also be streamed at http://www.hhs.gov/live.
Material from Advisory Council Meeting -- January 17-18, 2012
- Meeting Summary [Available February 17, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2Sum.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2Sum.pdf (19 PDF pages)
- Overview Presentation Slides [Available January 27, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2-Slides1.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2-Slides1.pdf (16 PDF pages)
- Subcommittee Presentation Slides [Available January 27, 2012]
- http://aspe.hhs.gov/daltcp/napa/011712/Mtg2-SubSlides.shtml
- Meeting Agenda [Available January 13, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2Agenda.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2Agenda.pdf (2 PDF pages)
The first Advisory Council on Alzheimer's Research, Care, and Services meeting was held on Tuesday, September 27, 2011, 9:30am to 4:00pm at the Administration on Aging headquarters in Washington, D.C. The Advisory Council heard presentations and provided feedback on inventories of federal activities to address Alzheimer's disease and related dementias, gaps that can be addressed, and opportunities for collaboration. The national plan to address Alzheimer's disease and related dementias was also discussed.
Material from this Advisory Council meeting is available, and listed below.
The Draft National Plan to Address Alzheimer's Disease is now available. The draft National Plan is structured around five ambitious goals:
HHS is seeking input on the draft National Plan through March 30, 2012. Please send your comments to NAPA@hhs.gov. All comments will be shared with the Advisory Council on Alzheimer's Research, Care, and Services.
Please note that throughout the draft National Plan, the term "Alzheimer's disease," or AD, refers to Alzheimer's disease and related dementias, consistent with the approach Congress used in the National Alzheimer's Project Act. Unless otherwise noted, in this draft National Plan AD refers to these conditions collectively.
- Draft National Plan to Address Alzheimer's Disease [Available February 22, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/NatlPlan.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/NatlPlan.pdf (35 PDF pages)
HHS collected input through February 8, 2012 on the draft Framework. All comments have been shared with the Advisory Council on Alzheimer's Research, Care, and Services.
- Draft Framework for the National Plan to Address Alzheimer's Disease [Available January 9, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/Framework-Draft.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/Framework-Draft.pdf (12 PDF pages)
- Draft Background for the National Plan to Address Alzheimer's Disease [Available January 9, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/Background-Draft.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/Background-Draft.pdf (5 PDF pages)
A document which includes comments received about the National Plan, Alzheimer's and NAPA is available at http://aspe.hhs.gov/daltcp/napa/Comments/PubCom.shtml. New comments, and their attachments, will be added monthly.
- NAPA Public Comments [Last Updated February 9, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/Comments/PubCom.shtml
- Draft National Plan to Address Alzheimer's Disease [Available February 22, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/NatlPlan.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/NatlPlan.pdf (35 PDF pages)
- Draft Background for the National Plan to Address Alzheimer's Disease [Available January 9, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/Background-Draft.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/Background-Draft.pdf (5 PDF pages)
- Draft Framework for the National Plan to Address Alzheimer's Disease [Available January 9, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/Framework-Draft.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/Framework-Draft.pdf (12 PDF pages)
- Advisory Council Meeting #2: Meeting Summary [Available February 17, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2Sum.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2Sum.pdf (19 PDF pages)
- Advisory Council Meeting #2: Overview Presentation Slides [Available January 27, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2-Slides1.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2-Slides1.pdf (16 PDF pages)
- Advisory Council Meeting #2: Subcommittee Presentation Slides [Available January 27, 2012]
- http://aspe.hhs.gov/daltcp/napa/011712/Mtg2-SubSlides.shtml
- Advisory Council Meeting #2: Meeting Agenda [Available January 13, 2012]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2Agenda.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/011712/Mtg2Agenda.pdf (2 PDF pages)
- Advisory Council Meeting #1: Meeting Summary [Available November 4, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1Sum.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1Sum.pdf (7 PDF pages)
- Advisory Council Meeting #1: Overview Presentation Slides [Available September 30, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1-Slides1.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1-Slides1.pdf (2 PDF pages)
- Advisory Council Meeting #1: Inventories of Federal Efforts Presentation Slides [Available September 30, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1-Slides2.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1-Slides2.pdf (14 PDF pages)
- Advisory Council Meeting #1: Opportunities and Gaps Presentation Slides [Available September 30, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1-Slides3.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1-Slides3.pdf (15 PDF pages)
- Advisory Council Meeting #1: Meeting Announcement [Available September 9, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/092711/Mtg1.pdf (7 PDF pages)
- Federal NAPA Advisory Council on Alzheimer's Research, Care, and Services [Available September 20, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/fedmembers.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/fedmembers.pdf (3 PDF pages)
- PRESS RELEASE: Non-Federal Members Named to HHS Advisory Council on Alzheimer's [Available August 23, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/PR-082311.htm
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/PR-082311.pdf (1 PDF page)
- Non-Federal NAPA Advisory Council on Alzheimer's Research, Care, and Services [Available August 23, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/bios.shtml
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/bios.pdf (3 PDF pages)
- Federal Register Notice Establishing the Panel and Call for Nominations [Available June 10, 2011]
- Full HTML Version http://aspe.hhs.gov/daltcp/napa/fedreg.htm
- Full PDF Version http://aspe.hhs.gov/daltcp/napa/fedreg.pdf (1 PDF page)
Home Pages:
Office of
Disability, Aging and Long-Term Care Policy (DALTCP)
Assistant Secretary for Planning and Evaluation
(ASPE)
U.S. Department of Health and Human
Services (HHS)
Last updated: 02/22/2012