ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES

Tuesday, January 17, 2012
9:30am

PDF Version: http://aspe.hhs.gov/daltcp/napa/011712/Mtg2-Slides1.pdf (16 PDF pages)

Draft Framework Overview

Helen Lamont

Challenges

• There are no pharmacological or other interventions to definitively prevent, treat, or cure the disease.
• Improved care quality is needed.
• Family members and other informal caregivers, who take on the responsibility of caring for a loved one with AD, need support.
• Stigmas and misconceptions associated with AD are widespread and profoundly impact the care provided to and the isolation felt by people with AD and their families.  
• Progress should be coordinated and tracked.

Goals

• Prevent and Effectively Treat Alzheimer’s Disease by 2025.
• Optimize Care Quality and Efficiency.
• Expand Patient and Family Support.
• Enhance Public Awareness and Engagement.
• Track Progress and Drive Improvement.

Proposed Actions to Achieve Goals 4 and 5

Strategy 4.A: Educate the public about Alzheimer's disease

• Design a national education and outreach campaign
• Conduct a national education and outreach campaign on Alzheimer’s disease

Strategy 4.B: Work with state and local governments to improve coordination and identify model initiatives to advance Alzheimer’s disease awareness and readiness across the government

• Convene leaders from State and local governments
• Continue to convene Federal partners

Strategy 5.A: Enhance HHS’ ability to track progress

• Identify major policy research needs
• Identify needed changes or additions to data

Strategy 5.B: Monitor progress on the National Plan

• Track plan progress
• Update the National Plan annually

Feedback on Framework and Goals 4 and 5

Advisory Council

Proposed Actions to Achieve Goal 3

Cindy Padilla

Strategy 3.A: Ensure receipt of culturally sensitive education, training, and support materials

• Identify culturally sensitive materials and training
• Distribute materials to caregivers
• Utilize informatics for caregivers and persons with AD

Strategy 3.B: Enable family caregivers to continue to provide care while maintaining their own health and well-being

• Identify unmet service needs
• Review the state of the art of evidence-based interventions that can be delivered by community-based organizations
• Develop and disseminate evidence-based interventions for people with Alzheimer’s disease and their caregivers
• Expand implementation of effective caregiver interventions
• Support caregivers in crisis and emergency situations

Strategy 3.C: Assist families in planning for future long-term care needs

• Examine awareness of long-term care needs and options to identify barriers to planning
• Expand long-term care awareness efforts

Strategy 3.D: Maintain the dignity, safety and rights of people with Alzheimer’s disease

• Educate legal professionals about working with people with Alzheimer’s disease
• Monitor, report and reduce use of anti-psychotic agents for persons with Alzheimer’s disease in nursing facilities

Feedback on Framework and Goal 3

Long-Term Services and Supports Subcommittee
David Hoffman

Proposed Actions to Achieve Goal 2

Shari Ling

Strategy 2.A: Build a workforce with the skills to provide high-quality care

• Collect and disseminate dementia-specific guidelines and curricula for all provider groups across the care spectrum
• Strengthen the direct-care workforce
• Strengthen the State aging workforce
• Support State and local policies

Strategy 2.B: Ensure timely and accurate diagnosis

• Link the public to diagnostic and treatment services
• Identify and disseminate appropriate assessment tools for use in the Medicare Annual Wellness Visit

Strategy 2.C: Educate and support patients and families upon diagnosis

• Educate physicians and healthcare providers about accessing long-term care
• Enhance assistance for people with AD and their caregivers to plan for care needs

Strategy 2.D: Identify and implement high-quality dementia care guidelines and measures across care settings

• Explore dementia care guidelines and measures

Strategy 2.E: Ensure that people with AD experience safe and effective transitions between care settings and systems

• Implement and evaluate new care models to support effective care transitions for patients with Alzheimer’s disease
• Develop an AD-specific toolkit on care transitions

Strategy 2.F: Advance coordinated and integrated health and long-term care services and supports for individuals living with AD

• Review evidence on effectiveness of care coordination models for people with Alzheimer’s disease
• Implement and evaluate care coordination models

Strategy 2.G: Improve care for populations disproportionally affected by Alzheimer’s disease

• Create a taskforce to improve care for these specific populations

Feedback on Framework and Goal 2

Clinical Care Subcommittee
Laurel Coleman

Proposed Actions to Achieve Goal 1

Richard Hodes

Strategy 1.A: Identify research priorities and milestones

• Hold an international Alzheimer’s disease research summit to identify priorities, milestones, and a timeline (May 2012)
• Solicit public and private input regarding Alzheimer’s disease
• Convene a scientific workshop on other dementias in 2013

Strategy 1.B: Enhance scientific research aimed at preventing and treating Alzheimer’s disease

• Expand research to identify the molecular and cellular mechanisms underlying Alzheimer’s disease, and translate this information into potential targets for intervention
• Continue genetic epidemiologic research to identify risk and protective factors for Alzheimer’s disease.
• Increase enrollment in clinical trials and other clinical research through community, national, and international outreach
• Continue clinical trials on the most promising pharmacologic interventions
• Continue clinical trials on the most promising lifestyle interventions

Strategy 1.C: Accelerate efforts to identify early and presymptomatic stages of Alzheimer’s disease

• Identify imaging and biomarkers to monitor disease progression
• Maximize collaboration among Federal agencies and with the private sector

Strategy 1.D: Coordinate research with international public and private entities

• Inventory Alzheimer’s disease research investments and use a research ontology framework to analyze research portfolio information
• Expand international outreach

Feedback on Framework and Goal 1

Research Subcommittee
Jennifer Manly

Public Input

To provide input on the National Plan, please email napa@hhs.gov

Where to?

Top of Page

NAPA Home Page

Home Pages:
Office of Disability, Aging and Long-Term Care Policy (DALTCP)
Assistant Secretary for Planning and Evaluation (ASPE)
U.S. Department of Health and Human Services (HHS)

Last updated:  01/26/2011