Tuesday, April 29, 2014
ACT on Alzheimer's Presentation
What is ACT on Alzheimer's?
- Statewide
- 60+ organization
- Volunteer driven
- 300+ individuals
- Collaborative
- Impacts of Alzheimer's
- Budgetary
- Social
- Person
Genesis of ACT on Alzheimer's
- 2009 Legislative Mandate for Alzheimer's Disease Working Group (ADWG)
- Legislative Report Filed in January 2011
- ACT on Alzheimer's is second generation of work focusing on implementation
Collaborative Structure
- 45+ Leadership Council
- Advisors
- Strategists
- Champions
- 10+ Management Steering committee
- Organizations actively involved in day-to-day operations
- 300+ Operations
- Executive Lead
- Project Director
- Project Manager
- Five Leadership Groups
- Fiscal Sponsor
- Community ACTion Teams
Goals/Common Agenda of ACT
- Identify & Invest in Promising Approaches
- Raise Awareness & Reduce Stigma
- Equip Communities
- Sustain Caregivers
- Increase Detection & Improve Care
Identify and Invest in Promising Approaches
- Economic model to identify promising approaches that control costs associated with Alzheimer's
- Initially use model to estimate savings and return on investment for in-person caregiver support
- Results reflected in Health Affairs and subsequent Net Savings analysis
** Funders: UCare; BCBS; Care Providers of MN Foundation
Increase Detection and Improve Care
- Develop and disseminate Practice Tools that support providers in assessing, diagnosing, treating and managing dementia
- Develop dementia curriculum for health professionals and standards for health care homes
** U of MN Center on Aging (HRSA funds)
Audiences for Provider Tools
- Primary Care Providers/Health Care Homes
- Care Coordinators
- Community Based Organizations
- Persons with Early Stage AD; Care Partners
- Direct Care Service Staff Trainers
- Mid-Late Stage Providers
- Professional School Faculty
- Electronic Record Providers
Sustain Caregivers
- Enhancements to MinnesotaHelp.info
- Dementia capable Senior LinkAge Line staff and Caregiver Coaches
- After a Diagnosis, caregiver tool
**Leveraged DHS SystemsIntegration Grant
Equip Communities and Raise Awareness
- Develop a Community Toolkit to foster dementia friendly communities
- Support community implementation of the toolkit
*Funders: Blue Plus, MN; Medica Foundation; Greater Twin Cities United Way
Dementia-Friendly Community
- Early diagnosis and quality care and support
- Dementia-aware and responsive customer service
- Suitable transportation and public spaces
- Emergency preparedness and response
- Independent living and quality of life support
- Welcoming and supportive spiritual environment
- Dementia-aware and responsive client services
- Specialized memory loss services
Foundation for Dementia Community Toolkit
- Informed by research regarding stages of community readiness and engagement
- Initiate mobilization
- Establish organizational structure
- Build capacity for action
- Plan for action
- Implement
- Refine
- Institutionalize
Four-Phase Community Toolkit
- Convene: Action Phase 1
- Convene key community leaders and members to form an Action Team.
- Assess: Action Phase 2
- Assess current strengths and gaps within the community.
- Analyze: Action Phase 3
- Review findings to understand your community's needs anddevelop a plan to take action.
- ACT Together: Action Phase 4
- ACT Together to pursue priority goals to foster community readiness for dementia.
Action Team Composition
- Action Team
- People with Dementia
- Family Caregivers
- Actions
- Residential Settings
- Wellness
- Faith Community
- Diverse & Underserved Populations
- Service Clubs
- Financial & Legal Planning
- Business
- Non-Profit Organizations
- Educational Institutions
- Senior Service Providers
- Government Agencies
- Health Care Community
- Community Members
Assess--Capacity for Action
- Approach
- Informal method to gauge community readiness, raise awareness, create linkages and spark momentum for change
- A conversation, not a study
- Multi-Sector Scope
- Action Team
- Adult Day
- Caregiver Supports
- Employers
- Health Care Providers
- Clinics
- Transportation
- Home Health Providers
- Hospitals
- Legal and Financial Planners
- Local Government
- Residential Settings
- Social Service Agencies
- Community Members (e.g., faith, business)
Analyze--Planning for Action
Look for High Priority, Low Activity Areas of Need
Phase-Specific Technical Assistance
PHASE | ACT on Alzheimer's Technical Assistance |
---|---|
Convene |
|
Assess |
|
Analyze |
|
ACT Together |
|
Action Communities
- Bemidji
- Brainerd/Baxter
- Cambridge
- CLUES (St. Paul/WSP)
- Detroit Lakes
- Edina
- Forest Lake
- Harmony
- International Falls
- MN Council of Churches
- Marshall
- Northfield
- Roseville
- St. Louis Park
- St. Paul Neighborhoods
- St. Paul NE Neighborhoods
- Twin Cities Jewish Community
- Walker
- Willmar
We ACT so You Can ACT!
- Learn more
- Watch the Toolkit videos
- Seed Funding for Action Communities -- 2014
- Questions? Email info@ACTonALZ.org
Join Us!
- ACT on Alzheimer's
- www.ACTonALZ.org