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Advisory Council October 2018 Meeting Presentation: Updates and Follow-Up from July Meeting

ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES

Friday, October 19, 2018

Printer Friendly Version in PDF Format (4 PDF pages)

 

Updates and Follow-Up from July Meeting

Laura N. Gitlin
Rohini Khillan

Updates

  • National Plan 2018 Update
  • Impact of National Research Summit on Care and Services
  • 2018 Non-federal Recommendations Update
  • Recommendations for actions by Advisory Council

National Plan Update

  • It's finally done!
  • Released officially today on the NAPA website (listserv announcement going out with the link)
  • Format is the same as it was in earlier Plans, organized by goals/strategies/actions
  • Recommendations are not included
  • New effort to index the Plan across time on the website so you can see how strategies/actions have evolved over the past 6 years

Impact of Care Summit

  • Manuscripts and publications in progress
  • Meeting with NIA and the Alzheimer's Association

2018 Recommendations Update

  • Final recommendations are posted on the NAPA website
  • Driver diagram update
  • Dissemination plan for recommendations moving forward

Recommendations for actions by the Advisory Council

  • Planning for the 2020 Care Summit
  • Identifying an approach/work group for outlining best practices for comprehensive dementia care
  • Nomenclature

Update on Dementia Terminology

  • Working Group Formed
    • Ronald Petersen, PhD, MD, Mayo Clinic, chair
    • Jason Karlawish, MD, U. of Pennsylvania
    • Dave Knopman, MD, Mayo Clinic
    • Jim Leverenz, MD, Cleveland Clinic
    • Angela Taylor, Lewy Body Dementia Assoc.
    • Sandra Weintraub, PhD, Northwestern U.
    • Mary Widmeyer, MD, Mayo Clinic
  • 2019 ADRD Summit Session
    • NIA/NINDS Staff Leads
      • Melinda Kelly, NIA
      • Sophia Jeon, NINDS
    • Session Chairs
      • Ron Petersen, PhD, MD
      • Angela Taylor

Potential working group Deliverables

  • Half-day virtual workshop on dementia terminology
  • Development of strategy to engage relevant stakeholder groups
  • Present developing recommendations at future AD/ADRD summits for public comment
  • Engage stakeholders to advance the work in progress
  • Refine recommendations
  • Organize a conference for public comment
  • Ultimately, publish recommendations on terminology

Return to

National Alzheimer's Project Act Home Page

Advisory Council on Alzheimer's Research, Care, and Services Page

Advisory Council on Alzheimer's Research, Care, and Services Meetings Page